Neuropathy with back pain exercise

Posted by steveinmontana @steveinmontana, Apr 4 3:53pm

I am 73 and haven't been diagnosed with any kind of PN yet, although, through extensive research, determined that I have some form of PN in my feet. I have a conductive nerve test in June (first available). Experiencing numbness in toes and balls of both feet moving to ankles, that causes balance issues. No falls as of yet. To exacerbate this, I suffer from spinal stenosis at my L4/5 and S1. I've had a radio frequency ablation that failed and just had an epidural.

Enough about my symptoms.

I've only been able to bear standing no longer than 10 or 15 minutes without having to sit to relieve the back pain, so exercise has been out of the question for me. About a year and a half ago I bought a treadmill that just sits there because I just can't use it for much more than 5 minutes due to my back pain. My granddaughters get more out of it when they come to visit!

So, finally my question.

What is a good indoors exercise machine I can use to get back into some halfway decent shape? Get the legs strengthened and burn some calories. I used to have a recumbant, but found I just didn't care for it and sold it. I'm thinking an old fashioned stationary bike would be best. Good for legs and burning calories and easy on the back. Any other ideas that I can't think of would be greatly appreciated!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for cathjerry @cathjerry

@steveinmontana what are tens units?

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@cathjerry They are devices that vibrate affected parts of the body to alleviate pain and enhance healing through vibration.

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Profile picture for bjk3 @bjk3

@brennankb55 I know well your dilemma, as well as the back pain that just doesn't abate no matter what options you offer to it. I'm so sorry that you are having this experience. It is so difficult. Four years ago (when I was 74) I was in a similar position having been diagnosed with spinal stenois, spondelsesthesis, arthritis, and bone spurs. I had P.N. for about 20 years beforehand, as well - un- diagnosed until a required battery of preoperative tests. I had physical therapy, myokinetic treatments, and regular chiropractic care, and finally had no option but to consult with an orthopedic surgeon. The first one said he wouldn't touch my back and recommended a surgeon at my state's university teaching hospital. The second one, recommended by a trusted friend whose recent back surgery was successful (and whose recovery seemed crazy fast), said he would do the surgery, but only after I had a consultation with the same surgeon that the first doctor recommended. I did have that appointment at the university and was so impressed by the range of pre-operative tests they scheduled, as well as the efficiency and professionalism of the staff, that I chose to have the surgery there. Among the tests was an EMG and nerve conduction study which diagnosed the neuropathy. Long story short, I did have the surgery and I have not regretted it for a moment. Instant relief, great recouperation - until a couple of months later I tripped and fell, breaking my hip. That's the part that has given me mobility issues that I'll have for the rest of my life. Also, the neuropathy worsened - I think it had to be related to the 7-hour surgery (which turned out to be more complicated than anticipated), and I feel that the university hospital likely knew this could/would be related to spinal surgery and it was a way of protecting themselves against a lawsuit, etc. to know the condition was already present prior to their intervention. I don't blame them! I have no pain from anything except the neuropathy, and my pain management specialist nailed the right combination of medications: Tramadol and Pregabalin (Lyrica). I continue to go to my chiropractor for a monthly adjustment, have a myokinesthetic treatment every 3 weeks, and I take the same range of supplements that I have for years. I'm sure that this account seems like an impossibly long process, but it does give you time to think things through as you go. It took me years to come to the conclusion that I had no choice but surgery, but once the decision was made and I had confidence in the choice of surgeons, my mind , at long last, found peace. The most important piece was and is my faith that God answers our prayers and guides our decisions if we ask Him to. I can't speak to the experience of others, but that's how it is for me. You are wise to ask as many people as you can to share their experiences ~ these will also help guide how you come to the best solution for you.
~ Barb

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@bjk3 My 2nd opinion was at the only other hospital in Montana with spine surgeons, and he told me I needed to go out of state for what I needed! A 3rd in Dallas who is very forward thinking and does a lot of minimally invasive back surgery, shook his head and said I need screws and rods. I will not do this. Logistically it's virtually impossible. So, I'm just going to have to keep on looking. Thanks for your response!

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Profile picture for brennankb55 @brennankb55

OMG! Y'all aren't giving me much hope. I'm just at the beginning of the low back pain journey. I had my 2nd MRI yesterday morning (Easter Sunday) and see the spine doc this Wednesday to go over the results. I first thought it was just sciatica again in my left butt cheek that ran down my thigh into my calf. But then after 2 weeks that sort of eased up but my low back just above my tailbone was screaming at me and the pain and burning in my hamstrings and butt has made it almost impossible to walk. I just got a walker and a rollator is ordered. I'm 71 and have battled idiopathic PN for 15 years and am on Lyrica but am considering switching to Amitriptyline. Anyway, the 1st MRI showed a mild disc bulge in 2021 that was compressing the nerve at L4-L5 / S1. But I didn't have back pain, so the doctor I had at the time said it wasn't causing my neuropathy. So now I have excruciating back pain. Spine doc's notes say possible spinal stenosis with radiculopathy. Ugh - after reading what everyone here is reporting, I'm scared as to what to let them do and not do! A friend of mine has had similar back issues minus the neuropathy. She said absolutely don't get an ablation! She has had an epidural and various other things and said she still has pain. At least she can walk under her own power. So ... Has anyone had any positive results with either a procedure or a drug or anything else?

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@brennankb55 The location of your diagnosis, L4/5, S1 is exactly the same as me. The ablation failed and I just had a epidural 4 days ago which has been of little help. The frustrating thing about all if this is, researching dozens of comments from both patients and surgeons, I've found that pain is never completely eradicated. Mobility is increased, but there is still pain in 10 to 20% of patients, which I suppose is a bonus. Not to mention the recovery time. (Laminectomy)

I'm holding out hope that maybe I'll find a surgeon that will do one of the minimally invasive procedures out there. They're outpatient and you walk out afterward!

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Profile picture for steveinmontana @steveinmontana

@cathjerry They are devices that vibrate affected parts of the body to alleviate pain and enhance healing through vibration.

Jump to this post

@steveinmontana sounds like that would feel really good. Would like to know if PT has such devices.

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Profile picture for bjk3 @bjk3

@brennankb55 I know well your dilemma, as well as the back pain that just doesn't abate no matter what options you offer to it. I'm so sorry that you are having this experience. It is so difficult. Four years ago (when I was 74) I was in a similar position having been diagnosed with spinal stenois, spondelsesthesis, arthritis, and bone spurs. I had P.N. for about 20 years beforehand, as well - un- diagnosed until a required battery of preoperative tests. I had physical therapy, myokinetic treatments, and regular chiropractic care, and finally had no option but to consult with an orthopedic surgeon. The first one said he wouldn't touch my back and recommended a surgeon at my state's university teaching hospital. The second one, recommended by a trusted friend whose recent back surgery was successful (and whose recovery seemed crazy fast), said he would do the surgery, but only after I had a consultation with the same surgeon that the first doctor recommended. I did have that appointment at the university and was so impressed by the range of pre-operative tests they scheduled, as well as the efficiency and professionalism of the staff, that I chose to have the surgery there. Among the tests was an EMG and nerve conduction study which diagnosed the neuropathy. Long story short, I did have the surgery and I have not regretted it for a moment. Instant relief, great recouperation - until a couple of months later I tripped and fell, breaking my hip. That's the part that has given me mobility issues that I'll have for the rest of my life. Also, the neuropathy worsened - I think it had to be related to the 7-hour surgery (which turned out to be more complicated than anticipated), and I feel that the university hospital likely knew this could/would be related to spinal surgery and it was a way of protecting themselves against a lawsuit, etc. to know the condition was already present prior to their intervention. I don't blame them! I have no pain from anything except the neuropathy, and my pain management specialist nailed the right combination of medications: Tramadol and Pregabalin (Lyrica). I continue to go to my chiropractor for a monthly adjustment, have a myokinesthetic treatment every 3 weeks, and I take the same range of supplements that I have for years. I'm sure that this account seems like an impossibly long process, but it does give you time to think things through as you go. It took me years to come to the conclusion that I had no choice but surgery, but once the decision was made and I had confidence in the choice of surgeons, my mind , at long last, found peace. The most important piece was and is my faith that God answers our prayers and guides our decisions if we ask Him to. I can't speak to the experience of others, but that's how it is for me. You are wise to ask as many people as you can to share their experiences ~ these will also help guide how you come to the best solution for you.
~ Barb

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@bjk3 ~ Thank you, Barb. Most impactful to me was your comment that "God answers our prayers and guides our decisions if we ask Him to." That's what I've been praying from Proverbs 3:4-5. I fully trust Him and in His love and faithfulness. I truly believe He's often doing things behind the scenes that we can look back on down the road and see His hand at work. So thank you much for that encouragement.
I am curious as to the amount of Tramadol you were prescribed. I'm on 75mg of Lyrica 3x a day and 50mg of Tramadol, as needed, which I usually take in between the Lyrica doses, but it doesn't seem to be doing anything. I've asked my primary about switching to low dose Naltrexone in place of the Tramadol. Anyway, thank you for sharing your journey with me and sharing that hope that we have in Jesus. ~ Karen

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Profile picture for cathjerry @cathjerry

@steveinmontana sounds like that would feel really good. Would like to know if PT has such devices.

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@cathjerry ~ I think that might be a spinal stimulator. If so, a friend of mine just got one but I've not seen or spoken with her yet as to how it's working for her. I'll let you know when I do!

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Profile picture for steveinmontana @steveinmontana

@brennankb55 The location of your diagnosis, L4/5, S1 is exactly the same as me. The ablation failed and I just had a epidural 4 days ago which has been of little help. The frustrating thing about all if this is, researching dozens of comments from both patients and surgeons, I've found that pain is never completely eradicated. Mobility is increased, but there is still pain in 10 to 20% of patients, which I suppose is a bonus. Not to mention the recovery time. (Laminectomy)

I'm holding out hope that maybe I'll find a surgeon that will do one of the minimally invasive procedures out there. They're outpatient and you walk out afterward!

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@steveinmontana ~ I hear ya, Steve. People I know who have had numerous procedures all say the same thing - they still have pain, even if their mobility is improved. So it becomes a matter of pain management. I get the results of my MRI later today when I see my spine doctor. Sure hope you find the kind of surgeon you're looking for. Minimally invasive sounds good!

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Profile picture for brennankb55 @brennankb55

@cathjerry ~ I think that might be a spinal stimulator. If so, a friend of mine just got one but I've not seen or spoken with her yet as to how it's working for her. I'll let you know when I do!

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@brennankb55 thanks look forward to hearing from you!

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@steveinmontana
Long ones? Hmmm… Inside at home…
Stretch your feet, including. Buy the feet machine for less than $100. Stretch by standing up your legs, not your back, than move up and back. Go to a doctor that can help you w/out meds.
Thx,
Greg D. @greg1956

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Profile picture for steveinmontana @steveinmontana

@brennankb55 The location of your diagnosis, L4/5, S1 is exactly the same as me. The ablation failed and I just had a epidural 4 days ago which has been of little help. The frustrating thing about all if this is, researching dozens of comments from both patients and surgeons, I've found that pain is never completely eradicated. Mobility is increased, but there is still pain in 10 to 20% of patients, which I suppose is a bonus. Not to mention the recovery time. (Laminectomy)

I'm holding out hope that maybe I'll find a surgeon that will do one of the minimally invasive procedures out there. They're outpatient and you walk out afterward!

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@steveinmontana
That’s the #same# surgery 2 years ago. Pain is zero, but my balance problem is on my right foot. Causing falling down.
Thx,
Greg D. @greg1956

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