Packing question: What did you have ready for "the call"?

Posted by jodeej @jodeej, Feb 14, 2018

Hi all,
Happy Valentines Day!! <3
I'm just wondering if when you were packing for "the call" how much did you have ready and how much did you have to pack at the last minute? Also, was there anything that you didn't take that you wish you would have?
Thank you,
JoDee

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I just ran across this question. I am surprised I did not see it sooner. I had nothing packed for my transplant journey when the call came in. When I was put on the list I expected to wait at least 9-12 months. The call came in after only 6 months. I have traveled quite a lot, so I have a running list in my mind. The only thing I did not have along that I really missed was my wedding band. I do not wear it at home because of all the things I get my hands into and after I was released from the hospital I really missed it. I also was not prepared for the size and tenderness of my stomach. We went out to get some sweat pants. I picked up a zippered hoodie, but did not like the feel of the metal zipper on my stomach, so we had to go back out for some sweatshirts, as I was often very cold.

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I love this topic… is it still a similar list or has it changed over the years? I am asking for my husband?

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Profile picture for gigi32 @gigi32

I love this topic… is it still a similar list or has it changed over the years? I am asking for my husband?

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@gigi32 -I am looking at an updated packing list, and I see the same items that I remember from when I packed my bag 17 years ago. Things like: insurance card, ID, (valuables like jewelry shouod remain with caregiver or at home) current medications, eyeglasses, contact lens, hearing aids, dentures, along with personal toiletries, and digital devices with chargers seem to be commonly suggested. I personally included paper and pen/pencil for notes or doodling!
As for clothing, the key is Comfortable and Easy on Off. The patient will be furnished with the lovely hospital gowns and slippersocks! However the patient will need underwear, and comfortable clothing when he begins to become mobile. "Think" soft, larger than normal size, and easy on/off elastic waist pants, and loose fitting top. A sweater is very helpful because hospital hallways are usually cold. don't forget shoes od slipper for going home!
Gigi, Since you are at Mayo Clinic in Rochester there are plenty of places to purchase anything that you might have forgotten. Do you live at a distance? Have you looked into The Gift of Life Transplant House?

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@gigi32 -I am looking at an updated packing list, and I see the same items that I remember from when I packed my bag 17 years ago. Things like: insurance card, ID, (valuables like jewelry shouod remain with caregiver or at home) current medications, eyeglasses, contact lens, hearing aids, dentures, along with personal toiletries, and digital devices with chargers seem to be commonly suggested. I personally included paper and pen/pencil for notes or doodling!
As for clothing, the key is Comfortable and Easy on Off. The patient will be furnished with the lovely hospital gowns and slippersocks! However the patient will need underwear, and comfortable clothing when he begins to become mobile. "Think" soft, larger than normal size, and easy on/off elastic waist pants, and loose fitting top. A sweater is very helpful because hospital hallways are usually cold. don't forget shoes od slipper for going home!
Gigi, Since you are at Mayo Clinic in Rochester there are plenty of places to purchase anything that you might have forgotten. Do you live at a distance? Have you looked into The Gift of Life Transplant House?

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@rosemarya you won’t be using your medicine in the hospital you can only use theirs I found that out my last surgery bring a phone charger with a long cord and ear buds or headphones for noises extra clothes you won’t need in a long hospital stay I stayed for months and couldn’t walk so they weren’t needed and have support that can bring you anything thing you need

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One thing that was useful for me was to have extra toiletries in my suitcase so I didn't have to worry about that at the last minute. Also, since you are wearing your clothes and undies on a regular basis, write down a list of what you think you might need so it is easy to refer to your list when the call comes in. Comfortable clothes and shoes for sure and if you are going to Mayo Arizona a light jacket or sweater as it can be cooler in the hospital. I hope this helps.

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Profile picture for JK @contentandwell

So many great suggestions here, I have little left to add.
People have mentioned paper and writing implements to jot down questions. I suggest a notebook to keep track of everything so when you look back you will remember all that happened and that you went through. I meant to do that but the notebook didn't get packed and my husband couldn't find it at home. Of course I figured I would remember everything but I did not.

As @gaylea1 mentioned, a flashlight. I always pack a flashlight whenever I go away.

Also, a lip balm. I found my lips got very dry in the hospital. Thankfully they did have some there and gave me one but it took about a day and requesting it a few times before they actually did. Also, if you prefer something other than plain hospital water ask whoever is visiting you to bring something like Hint, or some sparkling water type of beverages.

Definitely something warmish to throw over your upper body. I have a light fleece jacket and it was a perfect weight and could easily be left on in bed when I was sleeping. I found out from previous hospital stays that I tend to get cold in hospitals.

I like to have slippers too for walking around. Those socks with sticky pads on the bottom just don't do it for me. Unfortunately, I had my expensive UGG slippers with me for one hospital stay and when they brought me down for an endoscopy someone took them off my feet and I never saw them again so don't bring anything too expensive that you value. They were brand new, so I definitely think someone stole them. After that I brought inexpensive slippers.

I can't think of anything else right now, most everything is covered, plus they do give you the essentials in the hospital so if you don't mind using their basic brands you are pretty well set.
JK

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@contentandwell
definitely lip balm 👍

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