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Y-90 liver cancer treatment: What's your experience?

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

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Turkey, Volunteer Mentor | @tomrennie | Apr 2 10:36am
In reply to @nana120 "@tomrennie Sometimes it worries me, but I try to just live my life & not focus..." + (show)
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@tomrennie Sometimes it worries me, but I try to just live my life & not focus on my NET. I do know that he was considering a newly FDA approved oral med, but I was recently diagnosed with GERD & IBS and he said it would do a number on my GI! No oral meds is the positive side I’m choosing to focus on

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@nana120 Do you recall what the oral med is called? I am curious. I also learned that I have or had GERD. Great attitude on choosing the positive side. I personally believe being positive really helps.

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nana120 | @nana120 | Apr 4 10:10am
In reply to @tomrennie "@nana120 Do you recall what the oral med is called? I am curious. I also learned..." + (show)
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@nana120 Do you recall what the oral med is called? I am curious. I also learned that I have or had GERD. Great attitude on choosing the positive side. I personally believe being positive really helps.

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@tomrennie I don’t know the name of the med he was considering, but will find out at our next telemed.

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Turkey, Volunteer Mentor | @tomrennie | Apr 28 10:11am
In reply to @fontanhccmom "@colleenyoung had a palliative care appointment at previous center which was not helpful. Will ask here..." + (show)
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@colleenyoung had a palliative care appointment at previous center which was not helpful. Will ask here at Mayo when we get to see some of the new providers.

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@fontanhccmom Did you get to see some of the new providers at Mayo? If so, how did those discussions go?

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edwardirving | @edwardirving | May 4 2:25am
In reply to @colleenyoung "In answer to your questions, @digibson. @mrodriguezc writes: "I have no cause why this happened to..." + (show)
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In answer to your questions, @digibson.
@mrodriguezc writes: "I have no cause why this happened to me. My liver is healthy? Can you share how expensive is the treatment in dollars or euros for reference? Which doctor did you see and where?

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@colleenyoung I recently had my first round of y90 with the angiogram at Shands north Florida. I have Medicare my insurance was charged upwards of 150k usd

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Turkey, Volunteer Mentor | @tomrennie | May 4 10:28am
In reply to @edwardirving "@colleenyoung I recently had my first round of y90 with the angiogram at Shands north Florida...." + (show)
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@colleenyoung I recently had my first round of y90 with the angiogram at Shands north Florida. I have Medicare my insurance was charged upwards of 150k usd

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@edwardirving Hi and welcome to Mayo Connect? What type of medicare plan do you have? Will it cover the Y-90 treatment?

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edwardirving | @edwardirving | May 5 2:01pm

I have part a and b and yes so far it has covered my treatment less specialist fees and scan copays

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fontanhccmom | @fontanhccmom | May 9 1:35pm
In reply to @tomrennie "@fontanhccmom Did you get to see some of the new providers at Mayo? If so, how..." + (show)
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@fontanhccmom Did you get to see some of the new providers at Mayo? If so, how did those discussions go?

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@tomrennie haven’t seen palliative care. But going back soon for follow up after evaluation.

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calinina | @calinina | May 18 5:24pm
In reply to @ljay "@digibson I had the y90 treatment in Dec. I just had my 3month mri and the..." + (show)
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@digibson I had the y90 treatment in Dec. I just had my 3month mri and the tumor is gone! Y90 worked and I had very little pain or side effects with it good luck

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@ljay That is amazing! If you don't mind my asking, how big was the tumor to start?

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