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What could doctors do better for people with epilepsy?

Posted by Chris Gautier, Volunteer Mentor @santosha, Jan 10 7:15am

First, let me wish you all a 2026 abundant in good health, well-being, resilience when needed, joy, peace and much love.
After reading many posts at the end of 2025 and into this new year, this question has been on my mind. I believe we all have valuable experiences to share on this topic.
For me, one of the things doctors could do more is provide truly individualized care. For many years, I was treated according to a standard protocol for temporal lobe epilepsy, without enough consideration for my individual responses and constitutional type. Finding a doctor who sees each patient as truly unique changed everything for me.
What has your experience been? What do you wish your doctors did more of, or differently? I'd love to hear your perspectives.

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

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Chris Gautier, Volunteer Mentor | @santosha | Apr 2 7:15am
In reply to @santosha "Good Morning @methel Thank you for sharing this. What a great example of true partnership with..." + (show)
Profile picture for Chris Gautier, Volunteer Mentor @santosha

Good Morning @methel
Thank you for sharing this. What a great example of true partnership with your neurologist! You also touched on something so important: the support staff.
That disconnect you describe at the front desk is unfortunately all too familiar. I've experienced that myself with my own neurologist's front desk.
I'd love to hear from others in our community: has a support team made your medical experience significantly better or harder?
Chris

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Hello Everyone!
My neurologist recently changed his front desk staff — thankfully! 😊 His previous assistant had an attitude that radiated "this is a boring job — isn't it time to go home yet?", just as @methel described so well. Scheduling appointments has become so much easier since then. The rest of his support team, I'm happy to say, is good.
I'd love to hear more about your experiences on this. Has your doctor's support team made your overall medical experience in your epilepsy journey significantly better — or harder?
Chris

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