oral and vulva lichen planus for years with no long term relief

Posted by lww @lww, Aug 14, 2025

Has anyone heard of any new treatments for vulva lichen planus My dermatologist just started me on Methotrexate 2mg once week. with folic acid every day except I take once week tablet. I have it so badly. The pain is terrible, all the skin peels and at times bleeds. Going to bathroom is excruciating. I also have in my mouth but I found a way to help it. I eat NO hot and spice food. I use electric tooth brush and ONLY baking soda on it to brush. My periodontist said I might be allergic to toothpaste. I rinse my mouth chlorhexidine when it is really bad. This seems to help some. I've used many different types of topical creams and ointments. I'm 82 and have had since I was in my early 60. They treated me for years for yeast infection which never helped.

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I’ve found the most effective treatment for my OLP is to rinse my mouth several times each day with 100% pure aloe Vera gel. It soothed and healed the ulcers much better than the steroid gels.

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Profile picture for ziggi @ziggi

I’ve found the most effective treatment for my OLP is to rinse my mouth several times each day with 100% pure aloe Vera gel. It soothed and healed the ulcers much better than the steroid gels.

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@ziggi …what brand of aloe Vera gel do you use?

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Profile picture for lww @lww

Thanks I was tested bout 4mos ago and only thing was allergic to food wise was cinnamon, which I've used all my life. I've stopped that now
I switched to many different toothpaste, not one suggested, but that didn't help. He said it is sodium something . I wonder may times if it inherited. Also, if all the medicines we take have anything to do with it.

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@lww …I use Cleure flavor free toothpaste and unflavored Closys Ultra Sensitive mouthwash. Both are SLS free. Apparently, SLS is banned in Europe. Can’t remember where I read that. I bring them to the oral hygienist when I have my teeth cleaned to avoid using her products.

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Profile picture for West Coast @kathy333

@ziggi …what brand of aloe Vera gel do you use?

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@kathy333
Something from Walmart- Fruit of the Earth. In the sun care/lotion section. It’s very thick- I coat my mouth and let it sit about 5 minutes then spit- no rinsing after spitting. I would do this several times a day until healed.

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Profile picture for ziggi @ziggi

@kathy333
Something from Walmart- Fruit of the Earth. In the sun care/lotion section. It’s very thick- I coat my mouth and let it sit about 5 minutes then spit- no rinsing after spitting. I would do this several times a day until healed.

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@ziggi Thank you! Ordered it online. No Walmart in my area. Take care.

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Profile picture for West Coast @kathy333

@ziggi Thank you! Ordered it online. No Walmart in my area. Take care.

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@kathy333 Best of luck! I hope it works for you!

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