My cancer is back...
2 years ago in January i was diagnosed with ovarian cancer that had spread all over...i went through chemo, multiple surgeries etc...by Oct i had NED...
well about a month ago i started having pain in my pelvic area, then in my upper abdomen.. , my CA125 was still at 18 the week before my pain started (which concerned me because it had been between 8 and 12 but what do i know LOL) so doctors weren't really concerned but i kept telling them something was wrong... the final thing which i think made them agree they needed a scan was when i told them i had started having that "balloon deflating" feeling every time i emptied my bladder in addition to the pain which is EXACTLY the feeling i was having that caused me to go to doc with a persistent UTI 2 years ago and led to the original diagnosis
finally they ordered a CT scan which i had done last Thurs... and it showed 2 spots in the pelvic cradle one measuring 1.0 cm, one smaller and 2 on my liver... so needless to say...i'm going back on the same chemo i took before since i responded so well to it next Thurs... i am NOT thrilled BUT had i not kept insisting that something was wrong they wouldn't have found it so quickly..
I had NOT been on a parp inhibitor because it doesn't "play nice" with my seizure meds so Mon i saw a neuro who is changing my seizure meds after 25 years to something that does ...lets just hope it controls my seizures as well as the one i've been on for that many years...
Not looking forward to the chemo regimen again but on the plus side i know what I have to look forward to, and you know what really sucks? my hair has JUST gotten long enough to put in a ponytail again...oh well at least i kept my favorite wigs lol...
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#2 is in the books...
ok well in my body but yall know what i mean... I got round 2 of chemo yesterday, big discussion with doc about those steroids that gave me hiccups.. he said it was to help with the nausea and i could choose my side effects and i straight up told him i'd rather deal with the nausea and he gave me more dissolvable zofran... and so far, yea i'm sicker this morning than last time BUT i'm not hurting from hiccups... almost didn't get the chemo because of ...yep you guessed it...low white blood cells, low red blood cells, low hemocrit, yadda yadda yadda...BUT it was close enough to where they decided by giving me nuelesta afterwards (my old friend lol) he would go ahead and let me have the chemo and also put it on the treatments for ALL future chemos...AND we're moving out my next chemo to 5 weeks out to give me an extra week of recovery to see how i do... so yea thats roughly it. oh and my CA125 went up from 21 to 24 but doc isn't concerned about that...he said the same tube of blood can have a variance of 3-4 numbers so he's not worried.... got a headache this morning too but i think thats due to being awake since 5 am lol
and now off to do a birthday cake for my baby son ...(he's 34 today), get bread going in the bread machine and sauce cooking down for spaghetti for his birthday dinner tonight...no he's still not married but its not for lack of trying...he swears he can't find a decent woman that 1) isn't an alcoholic or drug user, 2) looking for a sugar daddy or 3) looking for a man to raise her 5 kids by 4 different men lol his words not mine... but he's actively interested in meeting someone.. he'd like to settle down and have kids...if he meets the right one.. i'm proud he's not "settling" because he's lonely...
anyways i digress, sorry bout that...i just wanted to kinda update everyone and let yall know how it was going..
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4 Reactions@mommacandy Thank you for bringing us all up to date. Hiccups seems awful to me but then so does nausea. You're the best judge of you and so fortunately you get to decide on what you want to do. I don't know how can you get up the next morning and prepare all this food for your baby son's birthday!! I think many of us would do the same as it's a whole lot better than focusing on the side effects of the chemotherapy.
So, good. Although you had low white blood cell count, low red cell count, and on, you were still in the right neighborhood, so to speak, of treatment. The increase in CA125 is very small and sure the numbers will be variable and not exact.
I hope your son has a beautiful day surrounded by love and family. I hope, too, that he finds the right "one" for him. Does Momma know any one to introduce him to (hint, hint, and wink)? 😉
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1 Reaction@naturegirl5 believe me if i did i already would have!!! I hate seeing him lonely when all his friends have gotten married and are having kids...his last one just announced they're expecting in October...
but oh my.... yesterday was quite the adventure!!! So my son messaged and informed me he wanted chicken and dumplings and a vanilla cake...so i went over to the grocery store, got what was needed (because of course i needed chicken for that and i didn't have any in the freezer, i'd used the last i had a couple weeks ago), and right after that the excitement began...what excitement you might ask... well my neighbor D who has been a godsend during the cancer even while fighting her own sent a text saying "chicks on front porch" and i'm thinking "great after i just went to the store, that could have saved me a trip"...but oh my.... was i ever wrong!!!
i go out to the front porch and there were 5 baby chicks in a box with a waterer and feeder and bag of chick starter food....and all i can think of is "hubby is gonna have a meltdown" because EVERY time I've tried to get him to agree to letting me have chickens he's been a very firm no no no and no...well my neighbor D has known i wanted chickens ever since my best friends was killed by the bear that i took care of a couple of years ago.... So i'm thinking...what in the world am i gonna do, i need a cage for these.... so what does any mom do? i called my son in law who can Mcgyver anything and got him over and we were trying to figure out how to build something to keep them in away from the cats and dog and about 30 min later D shows up with their old rabbit pen and said i hope this works for them... it should til they get bigger (and i can see if i get to keep them once they're grown or they go to my older son who is wanting chickens on his homestead he's trying to build lol) so.....son in law wraps cage in chicken wire (which i conveniently had in the storage building) for a double layer of protection from cat paws and meanwhile i've baked a cake and got chicken cooking for chicken and dumplings etc...while he's still working on that, my birthday son and daughter show up to "be here when dad gets home to help do damage control" because they think its hilarious (aka want to see dad have meltdown over mom getting the chickens she wanted)
anyways hubby/dad arrives and isn't happy, he don't want chickens (don't like the noise), but eventually seemed to accept they are here...even went to rural king last night to get a heat lamp and wood chips for the cage and on the way asked if they were a quiet breed, and if they'd lay without a rooster and i explained yes they would but the eggs wouldn't be fertile, and they are silver laced wyandottes so not terribly loud and so forth...
So after we got back he got everything hooked up to HIS standards, added the wood chips (so i wouldn't make such a mess doing so) and so they are in my living room...my dog took up guard duty nipping at any cat that gets too close...(idk if he's protecting them as a guard dog or protecting HIS new "nuggets for later" but he can't get in the cage either so either way he's guarding them) but his whining is killing us lol and hubby was very surprised that when i put a blanket over the cage they quietened immediately...i explained to him it was same as getting dark and time to sleep...(he's a city boy, never been around chickens) and they are all chipper and happy this morning... so we'll see how it goes..
at least its give me something to focus on other than side effects of chemo lol and NO HICCUPS so it just PROVES that was what was causing them...
and that was yesterdays adventures in Day after chemo #2....
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2 Reactions@mommacandy So all of this is just one day after chemotherapy?
Your story about the chicks left for you by your neighbor was so hilarious. I can just see those confused little chicks in the rabbit pen, guarded by dog in your living room! So much for that "No, no and no" from your husband about getting your own chickens, right? Don't tell your husband I asked this but are you certain all of the chicks are hens? One of my neighbors brought home tiny chicks for egg laying only later to learn that some were roosters!! I don't anything about chicken breeds so I'll take your word for it that these Silver-laced Wynadottes are quick little chicks.
I hope the birthday party with family, baby chicks, cats and dogs was a wonderful celebration. Best of all, no hiccups too.
I couldn't find a photo of the Wyandotte chicken so in case anyone else is as interested as I am here is the description that includes a photoof the silver-laced wynadotte male - not to be confused with the female hen!! 😳 🐥
-- https://en.wikipedia.org/wiki/Wyandotte_chicken
I'm thinking you went to church today and maybe came home and actually rested?
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1 Reaction@naturegirl5 LMBO no i'm not certain but my neighbor promised to find homes for any roosters that might show up.. her son works at tractor supply so...we'll see.. he was the one who picked them out ..
but hubby actually went out and dug a few baby worms for them today so i'm guessing he's decided to just roll with it...prob cause he knows how happy it makes me lol...we've been married for 35 years, there's just some battles he figures aren't worth fighting...
i've not done much today cept take meds, sit on couch, watch the animals (the dog chasing cats away from the cage and the chicks running around), and go pick up a prescription. so guess that qualifies as resting, he even cooked lunch...
i attached a pic of them (looking down from the top of the cage) and i really hope yall don't mind me sharing some of the more humorous stories from the things i'm into...it seems to help me and who knows maybe it will help someone else
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2 Reactions@mommacandy Sure, that qualifies as rest compared to what you did yesterday! I'm. happy to hear that you sat on the sofa and watched the animals which sounds pretty fascinating to me.
That's a great photo. I'm enjoying your stories as you can tell. I'm figuring too that your stories will help all of us.
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2 ReactionsMy gosh- I am exhausted simply reading about your post-chemo day.
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3 Reactions@sle3364 I honor your bravery going through it a second time. I'm a first timer for an aggressive cancer and I'm refusing chemo as the hair loss and nausea would be horrible, so I know I have months instead of years, but I have had a good life so be it, but in reality I'm scared sh------.
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3 Reactions@mayers May I ask what type cancer? In 2017 I was diagnosed with serous papillary endometrial cancer. Stage 2 high grade. (Similar t ovarian cancer). My oncologist told me this is very recurrent and aggressive. I freaked out. I was put on regimen of carboplatin and taxols - 6 treatments and then 4 brachytherapy. Never got nausea -yes the hair and brows and eyelashes fell out- that was horrible- but I went to a great wig place had gorgeous wigs -people asked me where I got my hair color!! Since I was dating - I mastered eye pencils and makeup - and I must say I looked ravishing. Now 9 years later I am still free and clear-touch wood . I also used major ice packs for feets and hands and never got neuropathy. So you may want to rethink the chemo plan- I even did Zumba on the 4th day after infusion. And I was all alone- no one with me. But I made it- I am 77 now and those days are just a blur now.
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2 Reactions@mayers my first time i was on carbo/taxol...i was told locally that they could offer me comfort care...not an option imo because i was dealing with my best friend and his pancreatic cancer also and his only caregiver..., i went 4 hours away to a teaching hospital with a WONDERFUL cancer program where he was getting chemo...i was stage 3c, ovarian throughout my abdomen, went through 7 surgeries that year including 2 for skin cancers one of which i had to have nose reconstruction for ...yea the nausea and hair loss sucked, i went through i think everything possible it seemed but i honestly think i was more scared this time.. prob because i don't remember so much last time since i was dealing with his...
i think you should consider the chemo, BUT that is YOUR choice, no one can make that for you, however i was beyond was the local docs thought was treatable and they were wrong lol...of which i've told them so when i see them...(yea i tend to be opinionated but if i don't advocate for myself who will) yes the side effects suck but i rocked those wigs, i even had a blue one, my son who was in florida had one made from his hair (Can't find that pic"), i had a bright red one, one that was kinda the color of my hair before i started getting gray that looked really natural and a couple of wig caps that looked like i was just wearing a ball cap over my hair.. they were great...
attached are a FEW of my various looks while going though the hair loss etc ( I had about 20 wigs, amazing what i found NEW at yard sales lol)...i kept my favorite wigs in case i ever needed them but donated the rest to the cancer center for others going through it...it was like everything else...i dealt with it all with humor (including the go away shirt lol i had matching leggings with smiley faces on them) and even dressed as an elf when i was in for my last surgery in Dec 2024...i have that pic somewhere if you'd like to see it...gotta say i really didn't look good as a blond unless it was my ball cap one so i didn't share those LOL
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