Anger and epilepsy

Well i wish you luck in the future to find something that can stop your seizure's and will send a prayer your way. I also have seizures and can not drive till i go a year without one and then get a doctors release and take the test and exam all over for a new license, mine expired between the time i had my tumor removed and able to navigate traffic and have healed enough to carry on and attempt to get testing done and be able to drive again. sending a prayer now for you=======sent have a blessed day.

I have a lot of anger and gave up decades ago
of ever finding anything to help me.
I'm med resistant Had brain surgery and the VNS
and nothing has ever stopped my seizure ever
they've been slowed down a few times that;s about all.

Hi @belinda5000
First, I want to say — carrying this anger for so many decades, through a difficult birth, through surgery, through the VNS, through so many attempts to find relief — and still showing up and sharing your story here speaks volumes about your strength and resilience.
I've also had moments of rage, especially after my epilepsy diagnosis and my first two years of treatment, when I had to stop working and lost a great deal of independence due to some seizures and the terrible side effects of some medications.
But thankfully, with the tremendous support of my husband and my neuropsychologist, I didn't give up — and after going through quite a few doctors, I finally found one who treated me holistically. My neuropsychologist helped me work through the anger that was building inside me and causing real harm. Through that process, I readapted my life and found my happiness again. I no longer drive, but that doesn't bother me anymore — I've found new and safe ways to stay mobile. And my husband loves me no less because of it.
Have you had the chance to work through these emotions with a psychologist, or even better, a neuropsychologist?
You are not alone in this — wishing you comfort, strength, and much brighter days ahead.
Chris

I was diagnosed when I was 2 but I've had epilepsy all my life.
The doc who delivered me caused my epilepsy I'm a forceps baby.
I was refractory at a time in my life and also med resistance.
I'm not able to take geric meds they will eventually cause me to have seizures. I can only take name brand medications for epilepsy medications.
I had a RTL in 1982 in Montreal,Canada which only cut down on my seizures for a little while.in 1999 I got a VNS it did work very well had it for a short time 2 wks after I got it a new one came out. I've been on 26 different drugs and there is no hope for me never been controlled.. Belinda

Hi, @belinda5000 - I wanted to let you know I moved your recent post here to this discussion you started previously, as it echoed some of the same themes. Also thought it would be useful to get feedback from members who responded to you before in this discussion, such as @santosha @randallshields56.

@lisalucier
Gonna have to say thank you. was surprised at first because my mindset had been dealing with other issues that ran together and caused some anxiety at the beginning. If you ever need to move me someplace because of thinking process i have now, just let me know where you are gonna put me. i know i jump around. In part due to the subject matter and striking a cord in me saying i might have something that may help. I always appreciate what you do and have been through. Thank You and have a blessed evening.

@belinda5000

Hi Belinda,

All here have our own struggles with epilepsy. It just doesn't affect us, but also our loved ones around us. They won't understand what we are facing, and vice versa. It's tough, and this forum is a place to each share our own experiences in search for that bit of sunshine.

It's a chronic condition which we have to first accept it's never going to be cured, only merely to be managed. Mine is also a refractory one, and my neurologist said if I was to undergo some surgery, it's as good as removing my entire brain. A body can take awhile and a bit of time to get used to a new drug with the same old active ingredient. I lost count of how many different medications I tried as well as the gambles with certain carefully monitored dosage combination over the past ~9 years. I have mild annoying seizure almost everyday. I thought Briviact might work, but now it seemed it wouldn't. But hey, there's always the next thing to try. When it's time for me to leave this world, at least I can still tell myself I did't chicken out this fight to make myself better.

I am glad I found so much support here, which is priceless. There are just so many great people I met here to inspire me to do better. Look at the sunlight. If you keep on staring at the darkness, it'll always be a dark path ahead of you.

Cheers,
Louis