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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 5 days ago | Replies (912)

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@colleenyoung

Hi @me67 @udderplace @brinys @deborahe @jeffk @Laydeewinx @sheila2005 @funkynotes @zshivaughn @jacobito @swstar,
I'd like to invite you to the new discussion group for people living with sarcoma. What type of sarcoma have you been diagnosed with? Are you currently in treatment or finished with treatment?

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Replies to "Hi @me67 @udderplace @brinys @deborahe @jeffk @Laydeewinx @sheila2005 @funkynotes @zshivaughn @jacobito @swstar, I'd like to invite..."

I had chondrosarcoma in 2002 for two weeks. A lump on my sternum was growing, lump removed, lump was sarcoma growing in rib. pieces of 3 ribs and pieces of sternum removed, gore-tex patch sown on. no sign or symptoms since. last CAT scan was 2 weeks ago.
all I have to pass on is get that lump or bump that lasts more than a week looked at. My tumor was grade 1, very early.

I have Leiomyosarcoma. I’ve been through 6 treatments of chemo where the cancer shrunk 1 cm with 2 cm remaining. It started as a fibroid in the uterus. After 25 external and 5 internal radiation treatments there’s been NO change. So now back to chemo on 3/22/24. My treatments started July 21/23. 62 year old female, still working through all of this in Arizona.

Endometrial Stromal Sarcoma. Diagnosed in 2018 and radical hostorectomy the same year. Been on AI inhibitor since then. Anybody on an AI for 6 years?

Hi, I'm about 10 months out of going through radiation treatment for Kaposi Sarcoma not related to HIV or organ transplant. As I'm sure everyone here can agree the care, compassion and knowledge provided by Mayo Clinic is the best in the world! I was able to connect with Dr. Steven Robinson who is one of the few people who specializes in Kaposi Sarcoma. I'm aware that there is no cure and after treatment it could return in 2 months, 2 years or 20 years. I'm 43 years old and would like to connect with anyone who might be experiencing a situation with this cancer. Long shot I know because it's a rare one. Personally, I don't want to be this interesting haha. In conclusion I'm returning every 3 months to dermatology and oncology for monitoring. God bless everyone who is experiencing a similar situation and family and friends.