I had chondrosarcoma in 2002 for two weeks. A lump on my sternum was growing, lump removed, lump was sarcoma growing in rib. pieces of 3 ribs and pieces of sternum removed, gore-tex patch sown on. no sign or symptoms since. last CAT scan was 2 weeks ago.
all I have to pass on is get that lump or bump that lasts more than a week looked at. My tumor was grade 1, very early.

I have Leiomyosarcoma. I’ve been through 6 treatments of chemo where the cancer shrunk 1 cm with 2 cm remaining. It started as a fibroid in the uterus. After 25 external and 5 internal radiation treatments there’s been NO change. So now back to chemo on 3/22/24. My treatments started July 21/23. 62 year old female, still working through all of this in Arizona.

Endometrial Stromal Sarcoma. Diagnosed in 2018 and radical hostorectomy the same year. Been on AI inhibitor since then. Anybody on an AI for 6 years?

Hi, I'm about 10 months out of going through radiation treatment for Kaposi Sarcoma not related to HIV or organ transplant. As I'm sure everyone here can agree the care, compassion and knowledge provided by Mayo Clinic is the best in the world! I was able to connect with Dr. Steven Robinson who is one of the few people who specializes in Kaposi Sarcoma. I'm aware that there is no cure and after treatment it could return in 2 months, 2 years or 20 years. I'm 43 years old and would like to connect with anyone who might be experiencing a situation with this cancer. Long shot I know because it's a rare one. Personally, I don't want to be this interesting haha. In conclusion I'm returning every 3 months to dermatology and oncology for monitoring. God bless everyone who is experiencing a similar situation and family and friends.

I was diagnosed with MPNST. Has anyone the same diagnose?

Hi everyone, I was diagnosed with a GIST 7 days ago, and I am scheduled for surgery on 6/16. I feel blessed because of the way this all played out. I went in for a routine endoscopy about some swallowing issues, and my GI doctor discovered the tumor. After second endoscopy with ultrasound and fine needle aspiration I was told that it was a GIST, approximately 3.5cm.

The other reason I am feeling blessed is the location, it is in the wall of the fundus, in the muscle tissue, and no other tumors were found in subsequent CT scans. My oncologist surgeon thinks this will be a curative surgery, barring any unforeseen issues.

I know not everyone has such prognosis, so my prayers are with everyone on this group, for comfort, peace, and healing.

I am now in the waiting mode; I will check in when I can and will give an update after surgery. I also know the doctor will be using the Da Vinci Robot for the surgery.

I would like to thank Mayo Clinic, and Ms. Young for this support group.

In Christ, David L