Hi and thank you for the introductions! I feel like I'm in uncharted waters with a variety of physical issues popping up after 9 years of no problems. GI problems may be due to pelvic adhesions, pelvic floor problems and radiation. Thorough work up at Mayo. Vision problems next with Mayo diagnosing unexplained skew deviation, though some question of thiamine deficiency due to malabsorption. Now fatigue and peripheral neuropathy.

My sarcomas were soft tissue. Dr. Attia is my treating Dr. Dr Sherman was the surgeon who removed the sarcoma. The cancer is in remission,yea. Currently I'm on a chemo maintenance program every six (6)

Hello. I have been diagnosed with leiomyosarcoma last summer 2021 at Northwestern Memorial in Chicago.
I had a total hysterectomy. I am w the University of MN now after dealing w a mesothelioma expert while taking care of my Dad. Now last month found a spot in my lung. I'm currently being treated at the University of Minnesota but am not confident. I guess just confused. I want a second opinion. Do I need to ask the dr to refer me to Mayo and if so is there a dr that specializes in leiomyosarcoma? You all sound so brave. My brother says there is a treatment at mayo that called high intensity focused ultrasound (HIFU) that works on some cancers. Would this work on mine? I appreciate your time. Christine

Stage 2 high grade sacoma in my buttox

Small cell squamous

I am diagnosed with pleomorphic sarcoma on my scalp, which I understand to be very rare. I have my initial meeting with my oncologist today and don’t yet know the stage or grade. She is a board certified surgical oncologist. Because of the location, should I seek a specialized treatment facility.

Hello, my name is Lisa.
My sweet daughter-in-law (Karla 27 yrs old) has just been diagnosed with synovial sarcoma. She is in the process of getting an appointment scheduled with MDAnderson Houston.

I was diagnosed with Leiomyosarcoma 2020. I have had a hysterectomy and they also removed both ovaries. Due to the spillage during surgery I also required the removal of the omentum. But it still continues to spread like wildfire. I had a right lung resection with pleurodesis on December 2022 due to my cancer spreading to my right upper lung. I have been treated with gemzar and taxotere with minimal success. They have also put me through immunotherapy drugs that threw me into autoimmune hepatitis and I had to stop taking Votrient and ipilimumad. I have had a HIPEC surgery with small bowel resectioning and tumor debulkin twice the first one in June 2022 and second one in February 2023 . I just finished my last chemotherapy round of doxorubicin. I am scheduled for a PET scan on May 30, 2023 at Stanford. My tumor specimens were sent to Natera for genetic testing and sequencing to find a better medical approach. I am hoping they find a way to extend my life with better treatments. I am not sure if I will be put on a maintenance drug at his point. I am only 47 years old and I was told by my ONGYN that I was too young for cancer and no CT was needed when I asked for one prior to surgery. I was concerned it could be cancer but she did not listen she kept telling me that it was a fibroid. Even though I was vaginal bleeding since December 2019 and needed 2 blood transfusions in less than 3 weeks she still insisted they were just fibroids and that I should not worry of it being cancer because I was young . I guess now I just have to keep fighting nothing else I can do but live with the consequences.

I was diagnosed with a malignant pleomorphic sarcoma in my left leg and had surgery and a skin graft at end of March/ middle of April. Reluctantly beginning radiation therapy next week.

Just diagnosed with sarcoma in chest area