@me67

Your Mayo experience sounds wonderful! I appreciate your sharing your story with our Connect Members.

Teresa

@c945105

Your husband sounds like a person with remarkable resiliency! We all wish him well.

Will you please keep us updated on how he is doing?

Teresa

My wife has Osteosarcoma and is only 32. It really hurts to see her in so much pain. Dr. Rushing at IU Indianapolis is an expert in this type of rare cancer. This Dr. is amazing how he explains the type what it does and what to expect. According to statistics and research IU is the #1 hospital for Cancer in Indiana. IU is also connected to several hospitals Riley, St. Jude, and others. Never seen a hospital so huge. All I know from my experience in UI they are great people who care for my wife. They have compassion and empathy towards there patients. All you can do is be there for them and stay strong. I try as much as possible but at times I break down and cry to see my wife suffer this why. It even hurts more for her to ask WHY ME? The pain is so excruciating for her she asked them to just cut her leg off. I am optimistic the pain pump will work and they can continue with chemo to beat this.

Thanks so much for info and also so glad you are doing great:) It's always encouraging to hear the success stories. We asked the one oncologist we've seen about proton therapy and he said it might be possible but most success is with tumors that are very defined in shape. Curious if your cancer was on the iliac or hip bone or somewhere else? Thanks

Thank you for the positive thoughts. Yes, I will do my best to update on treatment and progress.

I'm so sorry your wife has to be in such great pain. I don't understand that with all the advances with controlling pain why anyone should be walking around with severe dehabilating chronic pain. I hope that the pain pump works to take the pain away so she can get through her treatments and get cured. I can only imagine how helpless you feel when she's in such pain. Sending you and her positive vibes and prayers to get through it all successfully.

@bennyhill38, I wanted to check in and see how your wife is doing. How is chemo going? Has she finally been able to get relief from the pain?

@c945105, how is your husband doing? How are you?

You mentioned that your husband had an ostomy for a time due to rectal cancer. You may be able to provide some insight for a new member who will be getting a colostomy next month. See the post here: https://connect.mayoclinic.org/discussion/ostomy-adapting-to-life-after-colostomy-ileostomy-or-urostomy/?pg=2#comment-76214

She is doing better as far as the pain goes. They have been doing isolated radiation on the mass. However seems to be draining her. I was trying to get her into North Western in Chicago or Mayo don't want to loose her over not getting proper treatment. You really don't know how precious life is until someone you love could be taken away. I have a donation site up not having much luck, Have any ideas?

Robert

From what I understand the first surgery mass was in the femur bone, 15 CM was removed along with the hip Ball. Now there is another mass that is on the same side and on the pelvic bone? The mass has started to grow around the steel replacement previously put in. So I am confused here she was in 10 hours of surgery, it seems like to me the missed a mass it had to be there prior to the first surgery. What I am saying is the mass is already growing around the steel replacement this is in less than 6 months so it had to be missed. Now they don't want to do surgery again to remove it? Makes no sense to me, there reason is to shrink the mass. or get her pain under control. Well the mass is causing the pain so eliminate the mass eliminate the pain. Finally someone is on the same page as me. Shrink or remove the mass then the pain will decrease. So they are doing isolated radiation to shrink the mass. Problem is she is so fatigue from the radiation. I certainly don't want to loose her from treatments either.