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Y-90 liver cancer treatment: What's your experience?

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

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Colleen Young, Connect Director | @colleenyoung | Mar 20 2:14pm
In reply to @epac252 "I am the husband of Jacqueline C, and I had my Y90 on 9/3. This procedure..." + (show)
Profile picture for epac252 @epac252

I am the husband of Jacqueline C, and I had my Y90 on 9/3. This procedure is still kicking my butt with fatigue and weakness. Calls to the doctor's office result in responses from nurses saying it takes 3 - 4 weeks to improve, but at this point it is stagnant. My Oncologist has suspended my chemo for a couple of weeks due to the weakness, and as of now i have no CAT scan scheduled to review the progress.
My challenge is that there are so many fingers in the pie between oncology, radiation, IR, etc. that there is no one single point of contact to coordinate data and let the patient know what is going on and what to expect. Right now it seems like each department is kicking the can down the lane.

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@epac252, checking in. How are you (and @jacquelinec) doing now?

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ljay | @ljay | Mar 22 8:02pm
In reply to @digibson "I am scheduled for the y90 treatment for a liver tumor in July. I wan curious..." + (show)
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I am scheduled for the y90 treatment for a liver tumor in July. I wan curious to hear of your experience since your's what awhile ago.

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@digibson I had the y90 treatment in Dec. I just had my 3month mri and the tumor is gone! Y90 worked and I had very little pain or side effects with it good luck

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Turkey, Volunteer Mentor | @tomrennie | 5 days ago
In reply to @ljay "@digibson I had the y90 treatment in Dec. I just had my 3month mri and the..." + (show)
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@digibson I had the y90 treatment in Dec. I just had my 3month mri and the tumor is gone! Y90 worked and I had very little pain or side effects with it good luck

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@ljay That is awesome. I am happy for you. Did you have any other treatment prior to the Y90? What is the game plan moving forward?

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ljay | @ljay | 4 days ago
In reply to @tomrennie "@ljay That is awesome. I am happy for you. Did you have any other treatment prior..." + (show)
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@ljay That is awesome. I am happy for you. Did you have any other treatment prior to the Y90? What is the game plan moving forward?

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@tomrennie no I had no other treatment I’m looking at a transplant next but I have time next scans are in June

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Turkey, Volunteer Mentor | @tomrennie | 4 days ago
In reply to @ljay "@tomrennie no I had no other treatment I’m looking at a transplant next but I have..." + (show)
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@tomrennie no I had no other treatment I’m looking at a transplant next but I have time next scans are in June

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@ljay That is great. Hopefully, no other treatment is needed. What were you originally diagnosed with that required the Y90 treatment? Have you discussed a transplant with your doctor if further treatment is necessary?

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Colleen Young, Connect Director | @colleenyoung | 4 days ago
In reply to @fontanhccmom "@epac252 my son has had this same experience. No one wants to act on pain or..." + (show)
Profile picture for fontanhccmom @fontanhccmom

@epac252 my son has had this same experience. No one wants to act on pain or concerns. Hope you gotten what you need.

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@fontanhccmom, I'm sure you are worried about your son. It sounds like he is dealing with unresolved pain while in cancer treatment. Most cancer center have pain specialists, often they are in the palliative care department.

Is he able to get a referral to a cancer pain specialist or palliative care physician?

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nana120 | @nana120 | 3 days ago

My Y90 was done January 2025 and continued CT scans show it slowly seeming to dissolve. However, two more new ones have shown up now, but they are too small to treat at this time. My NET specialist is continues to do a “sit on it” theory with CT scans every 3-4 months.

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Turkey, Volunteer Mentor | @tomrennie | 3 days ago
In reply to @nana120 "My Y90 was done January 2025 and continued CT scans show it slowly seeming to dissolve...." + (show)
Profile picture for nana120 @nana120

My Y90 was done January 2025 and continued CT scans show it slowly seeming to dissolve. However, two more new ones have shown up now, but they are too small to treat at this time. My NET specialist is continues to do a “sit on it” theory with CT scans every 3-4 months.

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@nana120 How do you feel about the "sit on it" theory?

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nana120 | @nana120 | 3 days ago
In reply to @tomrennie "@nana120 How do you feel about the "sit on it" theory?" + (show)
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@nana120 How do you feel about the "sit on it" theory?

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@tomrennie Sometimes it worries me, but I try to just live my life & not focus on my NET. I do know that he was considering a newly FDA approved oral med, but I was recently diagnosed with GERD & IBS and he said it would do a number on my GI! No oral meds is the positive side I’m choosing to focus on

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fontanhccmom | @fontanhccmom | 3 days ago
In reply to @colleenyoung "@fontanhccmom, I'm sure you are worried about your son. It sounds like he is dealing with..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@fontanhccmom, I'm sure you are worried about your son. It sounds like he is dealing with unresolved pain while in cancer treatment. Most cancer center have pain specialists, often they are in the palliative care department.

Is he able to get a referral to a cancer pain specialist or palliative care physician?

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@colleenyoung had a palliative care appointment at previous center which was not helpful. Will ask here at Mayo when we get to see some of the new providers.

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