Intermittent fecal/sulfur breath odor

I'm desperate because this is all tertiary care has given me so far. I understand them when they say dysbiosis is difficult. What they seem to dismiss is the idea that there is some 'thing' that's causing the dysbiosis. While I'm sure the guy I saw is content on insisting dysbiosis just magically appears sometimes, I am not. There's a reason for the problem. Your body's microbiome doesn't just go off kilter from isolated stressful incidents. Whether it's tropical sprue or some furtive parasitic organism, something is causing all of this.

Personally, I think it's just apathy among doctors. They face large volumes of patients and they don't have time to devote investigative work for diagnostic testing to arrive at a lucid conclusion. And I understand it. I get it. I work in a bureaucratic system myself. BUt I'm willing to pay funnel extra money into this for more serious inquiries from doctors and they're staunchly set on sticking with whatever idea they've inculcated in their head.

I'm tired of this and I'm tired of being told to live with it. I guarantee if they had the same problem and had to stick with the same strict diet day in and day out, they certainly wouldn't be so damned smug with their closed-minded conclusion. I get the microbiome is a complex system, but it DOESN'T just go off and do it's own thing permanently without something else affecting it. Parasitic infection, hypochlorohydria, tropical sprue, and many other things can impact the microbiome-- and if they're not addressed the problem never goes away.

So again, I'm begging this organization to address the topic, and if they can't come up with something cogent and collected to answer it with, send us someone outside the clinic that can address it and start recommending more detailed testing. This has been a 7 year nightmare, and it's absolutely ridiculous how many doctors are quick to dismiss this. And if I raise my voice during the interview when they start being dismissive, then I"M the problem.

I appreciate all that you shared and have traveled a very similar path. In addition to exhausting all of the medical options presented to me (I will list them here in case any are of interest: multiple endoscopies (including one with a Bravo study to measure ph levels), colonoscopy, gastric emptying study, barium swallow test, multiple stool tests and lab work, and hydrogen/methane breath test), I also explored the holistic path (black walnut parasite cleanse, DGL, HCL, enzymes, ginger tea, grapefruit seed extract, and much more).

It seems we have found ourselves in a very similar place = our breath smells like poop.

Currently, I have become interested in studying SIBO caused from sulfur producing bacteria (the current test only measures hydrogen and methane) as well as focusing much more closely at specific dietary changes.

I know that meat exacerbates my issues (I can measure this by my kids saying things like "your breath smells like a rotten garbage")

To be clear, I have seen the dentist numerous times as well as an ENT, both pointed me back to the gut.

I am also an athlete (yoga 5x per week), lean body with an organic plant based diet with very little meat.

None of this is working and my GI is unsure of what to do next.

I also went to see multiple allergists and all of the results were negative.

What is interesting about these and related posts is that despite incredibly strong foul smelling breath (which is important evidence that something is wrong) no one has an answer.

Like many of you I now brush multiple times a day. So....how is it that 2 minutes after brushing and flossing others are smelling feces from one's mouth???

For me, all of this began in Costa Rica in 2006. After returning my gut was never the same. Bloating. Reflux. And for the last 5 years breath.

I suffer the same issues and its awful!.. i dont know how i do it but its very embarrassing and as i read these comments couldnt help to laugh because it really fing sucks... i experience it every day after eating meats, dairy, certain veggies i havent had the discipline to figure out. I drink alot of water and trying to reduce sugar intake, now trying to avoid anything with corn. I read somewhere to avoid anything that can ferment. Also bacteria from the lower intestine has migrated to the stomach and esophagus causing early breakdown and sulfur breath or poop breath. Please let me know if you have looked into this and how your current treatments are going..

I am experiencing the exact same problems. For about 8 years now. I just went to the dentist a month ago. Nothing there is causing it. My dentist said there are three things that causes bad breath. Gums, nasal or stomach. The ent found nothing. Actually I have been to several ent doctors. Also several dentist. I’ve had several CT scans with contrast. They found nothing. I recently visits doctor who ordered blood test for amalayse. (I hope I spelled it correctly) It’s an enzyme that is made by both the pancreas and salivary glands. There is something about my saliva that I just can’t seem to figure out. It seems this is where the problem is. After finding out about the elevated enzyme she ordered an ultrasound of my abdomen. The results showed a dialated pancreatic duct in the distal portion. And a fatty liver. The doctor said it comes from eating too many carbs. My body does not seem to digest carbs and sugar. I am waiting on a CT scan . My insurance company denied it. So my PCP is sending me to a Gastroenterologist. Hopefully they will approve it. From what I have read on google. A dilated duct could be a tumor. Also high risk for cancer. When the duct is blocked the digestive enzymes are not released. I have always said my food is not digesting properly because can smell everything eat. My poop smells very bad. The smell is also coming through my nose. I know for sure it is in my nose and throat. My breath can fill up a room. It has a fecal/sour smell. I’m not sure if it is coming from my body. I have heard vitamin b2 may help. It is Riboflavin. I will keep everyone posted. I will have a phone conference on April 23 due to coronavirus. I hope to have the scan as soon as all this is over. My doctor just got my results from the sibo test. I hope to get those this week. Good luck.

it seems we all have been diagnosed with SIBO. We are all experiencing the same symptoms. Sulfur smell, bad breath (some fecal). Odor coming out of lungs and nose. Odor can fill a whole room.We all have similar trigger foods like sugar, grains, carbs, eggs, cabbage, fruit like bananas. COVID-19 has been a blessing in disguise. Being quarantined I don't have to worry about people saying what's that smell. I can eat what I want and not worry about it. Fortunately, I have the ability to work from home. I'm still searching for a cure. I will have to return to the real world eventually, then what? Starve myself all day and not eat, because food triggers a smell. I just wish the medical community would listen and understand it's not in our heads, too many of us have the same symptoms.