Is the stapes surgery for otosclorosis worth it?
Hi there, I have otosclorosis and have been wearing hearing aids for a few years now. I’m thinking about getting the stapes surgery but wanted to know peoples thoughts.
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@scottpascoe Sorry to hear the first one failed. I had mine done in 2011 at the Silverstein Institute in Sarasota Florida by Dr. Seth I. Rosenberg, MD. I had no issues and the thing is still working. I was living in Southwest Florida at the time and the husband of a friend was a retired ENT and recommended I go up to Silverstein Institute in Sarasota to do the procedure. I think they were also training doctors in this procedure at the time. I have since read that the number of cases of otosclerosis is not high so it is not easy to find an experienced surgeon. In the beginning it was catch up so doctors had the chance to acquire more experience but now who knows? But I had my procedure done, my hearing improved immediately and I had no complications and it still works. I also liked the Doctor. Here he is listed in US News (link below). I don't know where you live, they might be able to give you the names of ENTs in your area that they know do this procedure. Best to find someone experienced!
https://health.usnews.com/doctors/seth-rosenberg-495637
@scottpascoe I had mine done at Mayo by Dr. Carlson. In addition to otosclerosis in that ear, I have an acoustic neuroma (tumor in my vestibular system) which typically knocks out the hearing.. I believe the stapes surgery was successful because my hearing was a little better in that ear after the stapes was replaced. It's been about three years and I still have some hearing remaining in my impacted ear. Best wishes to you!
I had my surgery with Dr. Driscoll in August. It was very successful and I am now able to use a hearing aide rather than considering a second BAHA Cochlear Implant. I am exploring having same surgery in other ear with Dr. Carlson as Dr. Driscoll is retiring. I have basically heard out of only one ear with my Cochlear for years and having hearing on both sides with aides is exciting!
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1 Reaction@rinagelman49 did the hyperacusis ever resolve for you? I am 7 months post-op from stapedectomy and had no issues up until a few days ago. I’m having a lot of challenges with louder sounds being painful and my own voice sounds like I’m talking through a broken speaker. I’m having to walk around with an ear plug in that ear which kind of defeats the purpose of the surgery. Not sure why this suddenly developed, as I have been hearing normal since my procedure in September.
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1 ReactionThe Shea Clinic in Memphis is world renowned for otosclerosis surgery. Their founder invented the surgery. I had my surgery in Buffalo NY by Dr Irwin Ginsberg - also world renowned but now retired. I was able to hear again without aids for 15 years. Then had to have aids. I went to Shea Clinic to be tested for repeat surgery but Dr Shea tested me and said there was not enough positive result to again do the surgery. I am 86. Otosclerosis is hereditary. both my Mother and my Grandmother had it. fortunately none of my 4 children or 5 grandchildren have been afflicted.
@lyndakr I also had positive results from my 2 stapedectomies 20 years ago (they were 5 years apart) that helped me go from hearing nothing in the damaged ear to being able to hear again, though my inner ear damage was bad enough that I had to start to wear powerful hearing aids right away. Continued to do that until left ear took a nosedive on the last audiogram causing me to have to get a cochlear implant last year. But the stapedectomies allowed me to live somewhat normal life for 20 years before I retired.
@hayhay1213 Unfortunately my hyperacusis has never solved, and most likely never will, despite the best efforts from my doctors and myself (self-training under the special hearing laboratory guidance). I would say it became about 20% better after the three years (!), meaning that I'm hearing normally for about 20% of the time. Not only the volume but also the character of the sound (from roaring to hissing, etc.) may change for me unexpectedly at any time. And all tests show nothing wrong with my eustachian tube functioning.
I hope your stapedectomy issues will eventually resolve. It may also depend on the age you had your procedure, because the brain has to adjust to new sound, and the longer you previously had the otosclerosis (I had mine for a few decades), the more problematic this adjustment would be. Wishing you the best.