Anyone had experience with modafinil for parkinson’s fatigue?

@southwest I do feel I am now getting a crash course in all aspects of Parkinson's even thought I have had it for a long time. Thinking it was only tremors did not put a fire under my tail. Now I have a set way of reacting to situations and evaluate, research and am very determined to find an outcome for not only me but to help others. For example. I am on the Vyalev pump since September of last year. There were several people who went through the trials before releasing it and just stopped because of the difficulty handling the pooling of the medication. I first hand had to deal with it by having a sight start to get infected. The hospital thought I had Sepsis and the way they treated me I didn't think I would come out alive. After two days of heavy antibiotics I left the hospital with more antibiotics and visited a surgeon. He lanced the area and had it packed for 4 days it was the size of a ping pong ball. I now encourage others of how to deal with this problem and express the pump is so much better than taking so many pills . I would be happy to explain further if anyone has questions. Thank you.

@sdcz
Studies and some patient experience, from what I am reading, say that some procedures help reduce fatigue although they are mainly for other symptoms. That was the idea when my doc wanted to have me try onapgo infusion, but insurance turned it down. Specific required symptoms not met. Doc says there is evidence that DBS can reduce fatigue. But I'm probably not shaky enough, not slow and tipsy enough, to get over the insurance hurdle for that.

I find it silly when providers give me handouts on fatigue, with irrelevant suggestions like "take restorative naps," when I have told them that does not work. That is in fact the problem.

I sometimes think the provider does not for whatever reason want to say "I don't know what to do, you are stuck with it" so they give you some trivial handouts and we are supposed to smile and politely walk away, to the front desk where we make our next appointment. spinning wheels.

I used modafinil for a year or so, and it was life-changing for me, because i would sleep on and off all day without it and never get off the couch. Then i moved to a shitty town in iowa and the doctors wouldn’t give it to me because they knew nothing about Parkinsonism and weren’t willing to learn. That was about 2-1/2 years ago. Over time my symptoms evolved and now sleepiness is no longer a problem, so I quit pursuing it. But I found it to be so very helpful with fatigue