Problems long time after colon resection

Posted by kets @kets, Dec 12, 2021

My husband has Severe pain 1 year after 4 inches of colon removed because of diverticulitis. He Feels fine sleeping but when upright and going throughout the day, pain returns. When he eats, pain. When he goes to the restroom, pain. Nothing helps. He has had multiple CT scans with and without contrast. Nothing reported. Blood work shows elevation in neutrophils but everything else is normal. What could this be? He is becoming more and more discouraged.

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Profile picture for boucow @boucow

My husband had his gall bladder removed in 2016 and complained of upper abdominal pain right after. He then began getting blood in his stool and they found flat polyps that could only be removed by a bowel resection. He brushed off the pain, assuming it was caused by the polyps. He had 18 inches removed and during follow up, mentioned he still had the pain from before. The surgeon(different one than did his gall bladder) told him it was ghost pains and sent him on his was. That was in 2017. His 1 year follow up showed more polyps, so they were removed and he was told he needed another colonoscopy in 2 years. Then covid hit. He finally got his colonoscopy early this year (2022) and he once again mentioned the pain. The doctor took it more seriously and said they'd look into it after this colonoscopy, which was completely clear. He never followed up. In March of this year, the pain became severe and he went to emergency. He was told there that he had gall stones that had been left behind, however the surgeon who did the gall bladder removal didn't speak to my husband personally and said she didn't believe the stones were causing his pain because they would have bothered him before now. If she's taken the time to talk to him, she'd have known he's been having pain for years. He is currently in hospital because the stones are blocking off the bile duct that allows bile into our digestive system. He has jaundice, and the bile backing up into his liver has caused severe infection. Because of covid surgery being backlogged, he's been in hospital 1 week, in severe pain, waiting to have the stones removed. Advocate for yourself because nobody knows our bodies better than us.

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Profile picture for mins4462 @mins4462

Thanks for this. I have no doubt it's adhesions after 7 surgeries. Yoga and stretching has helped significantly along with Tumeric/Bromelain. I am already doing your other suggestions and did prior to the surgery. I am taking psyllium husk capsules, colace and occasional Miralax with some improvement. Next step would be accupuncture as the under the rib cage continues.

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@mins4462 I have found dry needling and Myofascial release to be helpful.
The heating pad is my nightly go to. I also find binding or using an extra extra large elastic hair band as counter pressure extremely helpful.
Deep belly breathing very important.

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Profile picture for Ingegerd Enscoe, Alumni Mentor @astaingegerdm

@boucow - I feel for your husband! Abdominal pain for years without a good answer.
The remaining gallstones don’t have to be large- I had what they called “ gravel” that partially blocked the duct.
Are you at a major medical center now? I’m surprised that he has not had surgery yet- unless he’s being treated for an infection before surgery.
You are 100% correct in that you have to advocate for yourself. Your husband is lucky to have you to help him
Please let us know what’s happening! My very best wishes to your husband!

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@astaingegerdm Thank you for your reply. I'm only seeing it bow. Sorry for the long delay. After about a week in hospital, he was sent to another hospital for removal. The stone had caused too much irritation and swelling, so it had become lodged. They placed a stent, allowing the bile to bypass the stone. This was kept in place for 3 months, (during which time he was home) and helped relieve the swelling and irritation, making the stone easier to remove. They told him at that time, that it may have damaged his pancreas, but so far, other than occasional discomfort, there's been no further episodes of pancreatitis.

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@boucow
I’m happy to hear that your husband is doing well after such an ordeal.
Thanks for the update!

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Profile picture for kets @kets

Thank you for your reply. My husband only eats soft foods that are easily digestible. It doesn’t seem to help much. He’s in pain everyday and we don’t know where to go from here.

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@kets
I am pretty sure his pain is related to gas in the intestines and the peristalisis that is pushing the stool through his intestines with scar tissue formed at the anastomosis. My surgeon did a colonoscopy and saw I had a stricture at anastomosis site and he blew up a balloon on the scope gently and stretched it out a little so I could more easily pass the stool. Microscopic air got out of colon and went to my right shoulder inside but it resolved on its own and praise Jesus my surgeon was conservative and didnt take me to surgery. This is a normal occurrence if only a little air.
After that it has been easier to eat soft foods ,no girsley foods, no steak. I actually felt normal for 1st time in 5 months. I stopped loosing wt. Could choose foods I like. My surgeon may have to stretch it again a little but at least I have hope. Ask your surgeon about this and let only a surgeon who has done this many times do it. Also diverticulitis must be controlled. I also drink daily prune juice 4 ounces and 1 teaspoon olive oil.
Prayers for both of you.

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