CRCC y metástasis cerebral: I'm worried about treatment

Posted by dysanchezm @dysanchezm, Feb 27 7:58am

Mi papá le detectaron cáncer de células claras en estadio 4, después de la operación empezó ha no poder mover mano y pie derecho y salió que hizo metástasis en el cerebro, actualmente lleva 5 radioterapias de 10 holocraneal de fotones 3D, y va recibir inmunoterapia de axitinib más pembrolizumab, no es riesgoso? O alguien lo ha experimentado? Es que las cosas se complicaron porque tuvo convulsiones y por eso decidimos iniciar las radios lo antes posible, ahorita la mano ya la puede mover mejor, pero me preocupa el tratamiento

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My dad was diagnosed with stage 4 clear cell carcinoma. After surgery, he started losing movement in his right hand and foot, and it turned out to have metastasized to his brain. He's currently undergoing 5 out of 10 whole-brain radiation therapy sessions using 3D imaging, and he's going to receive immunotherapy with axitinib plus pembrolizumab. Isn't this risky? Has anyone else experienced this? Things got complicated because he had seizures, so we decided to start the radiation as soon as possible. He can move his hand better now, but I'm worried about the treatment.

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Profile picture for dysanchezm @dysanchezm

My dad was diagnosed with stage 4 clear cell carcinoma. After surgery, he started losing movement in his right hand and foot, and it turned out to have metastasized to his brain. He's currently undergoing 5 out of 10 whole-brain radiation therapy sessions using 3D imaging, and he's going to receive immunotherapy with axitinib plus pembrolizumab. Isn't this risky? Has anyone else experienced this? Things got complicated because he had seizures, so we decided to start the radiation as soon as possible. He can move his hand better now, but I'm worried about the treatment.

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@dysanchezm, I can understand that you are very worried for your father and you are worried about adding immunotherapy with axitinib (Inlyta) plus pembrolizumab (Keytruda).

I'm bringing in a few other members living with stage 4 renal cancer like @ronc531 @stparker54 @sammy15 @jimthomasintl @rtw1268 @nang and @max326 who may have experience with immunotherapy.

@dysanchezm, did you ask your dad's oncologist about the side effects and how they may affect your dad, given his health status? What are the risks of not doing treatment vs treatment?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@dysanchezm, I can understand that you are very worried for your father and you are worried about adding immunotherapy with axitinib (Inlyta) plus pembrolizumab (Keytruda).

I'm bringing in a few other members living with stage 4 renal cancer like @ronc531 @stparker54 @sammy15 @jimthomasintl @rtw1268 @nang and @max326 who may have experience with immunotherapy.

@dysanchezm, did you ask your dad's oncologist about the side effects and how they may affect your dad, given his health status? What are the risks of not doing treatment vs treatment?

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@colleenyoung
Yes, he already told us some things, but they gave us his test results and it shows that a tumor is growing where they removed his kidney. He also has tumors in his lungs and liver. I'm so sad and worried. He's going to start treatment on March 13th, but I feel like his cancer is very aggressive 🥺. I haven't told my dad so as not to worry him.

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Profile picture for dysanchezm @dysanchezm

@colleenyoung
Yes, he already told us some things, but they gave us his test results and it shows that a tumor is growing where they removed his kidney. He also has tumors in his lungs and liver. I'm so sad and worried. He's going to start treatment on March 13th, but I feel like his cancer is very aggressive 🥺. I haven't told my dad so as not to worry him.

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@dysanchezm, thinking of you as you and your dad prepare to start treatment tomorrow.

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