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Living with LPSVS (long post-COVID vaccination syndrome)

Posted by sandtoes @sandtoes, Jan 11, 2024

Has anyone experienced long-covid symptoms from the vaccines. I have been searching for 10 months now for the cause of my severe fatigue. I have been sent to an ENT, a cardiologist, a hematologist and undergone so many tests/scans. My doc told me a few days ago that he is stumped. No idea. Come back in a month. I pace myself to get through a day. Is this LPCVS? Is there something to do besides pace oneself? Should I ever get another covid vaccine?

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mishabear2025 | @mishabear2025 | Mar 1 8:14am

Oh I forgot to mention I Will be 88 years old may 4 2026.

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pattig09 | @pattig09 | Mar 2 11:16am
In reply to @mishabear2025 "I am 5 weeks out long covid. I tested positive march of 2021. 5 year's of..." + (show)
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I am 5 weeks out long covid. I tested positive march of 2021. 5 year's of complete disabilities interspersed with Short periods of total charity. I would go from not being able to write my name or my social security number to being able to function normally. My wife and my family do not accept that it's long covid and are ready to have me institutionalized. When I try to explain my behavior their attention span goes to zero. It's already cost me my marriage and support from my family. Is there some agency that is established to help explain in laymen's language whats happening?

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@mishabear2025 In laymen's languages, NIH (National Health Institute) does work on finding solutions for Long Covid sufferers and these scientists know LC is "real". It's estimated that a minimum of LC sufferers is around 3 Million (and that is just from reports on people who are seeing doctors for solutions). I'm sorry you experienced that 'zero span' support from family. I would offer a suggestion: Have your NP or GP run T-Cell labs on your blood. This will reveal the state of your immune system. It was this test after nearly 3 years of suffering that lead to a path to potential 'solutions'; beginning with symptom relief. Then, if your T-Cell are 'in trouble' ask for a doctor referral to a Infectious Disease Specialist in your area as this group around the US is doing work on Long Covid solutions.

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mishabear2025 | @mishabear2025 | Mar 2 12:15pm

Can I speak with a doctor that Will explain the effects of PVS to my family. They have decided that I am suffering a mental and physical breakdown and are ready to have me institutionalized.
I am 6 weeks out of suffering 5 years of PVS. Mentally @ 60% of clarity. I'm able to drive and funtion near normal. Physically not so Mich . still having balance and endurance issues. Is there someone at the mayo clinic that could explain to my family what's happening to me. My efforts to explain go to zero whenever I mention long covid.
PLEASE. HELP mishabear
Harold goldberg 5/4/1938

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mishabear2025 | @mishabear2025 | Mar 2 12:34pm
In reply to @pattig09 "@mishabear2025 In laymen's languages, NIH (National Health Institute) does work on finding solutions for Long Covid..." + (show)
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@mishabear2025 In laymen's languages, NIH (National Health Institute) does work on finding solutions for Long Covid sufferers and these scientists know LC is "real". It's estimated that a minimum of LC sufferers is around 3 Million (and that is just from reports on people who are seeing doctors for solutions). I'm sorry you experienced that 'zero span' support from family. I would offer a suggestion: Have your NP or GP run T-Cell labs on your blood. This will reveal the state of your immune system. It was this test after nearly 3 years of suffering that lead to a path to potential 'solutions'; beginning with symptom relief. Then, if your T-Cell are 'in trouble' ask for a doctor referral to a Infectious Disease Specialist in your area as this group around the US is doing work on Long Covid solutions.

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@pattig09
Pattie
Thank you for that reply. Can I have my family contact you to discuss this. I'm unable to make them understand. If I can't clarify this condition they will begin legal proceedures to have me declared incompetent and institutionalized.
Harold Goldberg

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samanthamiller | @samanthamiller | Mar 2 12:52pm

Have you checked your vitamin B12 and Iron levels? Severe fatigue can be a symptom of that or lack of iron in the body.

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