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Living with LPSVS (long post-COVID vaccination syndrome)
Post-COVID Recovery & COVID-19 | Last Active: Aug 1 9:30am | Replies (200)Comment receiving replies
@mishabear2025 In laymen's languages, NIH (National Health Institute) does work on finding solutions for Long Covid sufferers and these scientists know LC is "real". It's estimated that a minimum of LC sufferers is around 3 Million (and that is just from reports on people who are seeing doctors for solutions). I'm sorry you experienced that 'zero span' support from family. I would offer a suggestion: Have your NP or GP run T-Cell labs on your blood. This will reveal the state of your immune system. It was this test after nearly 3 years of suffering that lead to a path to potential 'solutions'; beginning with symptom relief. Then, if your T-Cell are 'in trouble' ask for a doctor referral to a Infectious Disease Specialist in your area as this group around the US is doing work on Long Covid solutions.
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@pattig09 I agree. I am going to my doctor tomorrow. I am going to ask for some extra blood work. I have read, as you know Pattig, research and the Mast T Cells are involved somehow as is the gut microbiome (I believe). 3 years ago, my B12 was a bit low but my folate was off the chart, not measurable. They work together. If one is low the other is usually high. I started B12 shots and then the B12 was normal, folate still off the charts. I did not give myself shots regularly after that. The last blood work I had, this year, my B12 was off the charts and folate normal. What in the _____? Cytokines also were flagged in 2023, so I am going to ask for some extra labs. Tired of this. We all are, I am sure. I am doing my concentration field placement for my MSW and I will be done in August. A 2 year curriculum has taken me 4 years due to this virus and the death of my partner. I keep getting punched. My field instructor does not believe in Long COVID. It is infuriating.
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Pattie
Thank you for that reply. Can I have my family contact you to discuss this. I'm unable to make them understand. If I can't clarify this condition they will begin legal proceedures to have me declared incompetent and institutionalized.
Harold Goldberg