Eagle Syndrome

I am going to see someone at Cleveland Clinic in neurotology. I am hoping they will just order the tests and not touch my face too much as I need to drive home. Is Dr. Ludlow good? Does he do styloidectomy surgery to resolve problem?

Another Dr I would try to reach out to is Dr Edward Hepworth in Denver Co
He’s an ENT skull based surgeon

FYI he is internationally sought after, so will have to wait I’m sure.
Hope this helps. I was diagnosed with Eagles Syndrome/ venous insufficiency
which isn’t true eagles syndrome but an enlarged styloid can impede the blood flow through the blood flow in brain. So my condition is most likely different from yours, I did a right jugular decompression surgery it he had shave off past of my styloid. So he would be able to do a styloidectomy as well
Sorry forgot to add that.

@fatihandhope I have

I was recently diagnoised by my ent doctor with Eagle Syndrome.
I was wondering if anyone else out there has this?

@laceylulu
In 2025 I was also diagnosed with Eagle Syndrome.
This is after more than a decade of Ear, Nose, Throat, Sinus, Eye and Teeth issues.
With no known diagnosis.
Easily 8 or more, MD'S, and Dentist during that prior decade.
The Eagle Syndrome was discovered only after a Harvard Dental School, Pain Management Specialist stated that I needed a Brain Scan.
I was doubtful, as was my PCP.
After multiple CT & MRI's. It was confirmed that I had a double, calicified, Styloids. AKA, Eagle Syndrome.
Both sides are very long.
1 MD Specialist at Mass, Eye & Ear, who has experience with Eagle Syndrome, does not accept my health insurance. ( And would not even see me as a consult.) Another at Boston Brigham and Women's Hospital, was able to confirm the diagnosis.
Then NOTHING!
Add on what we think is Glossopharyngeal Neuralgia.
( Both are rare medical issues but it is common for both of them to present together. )
And I am looking for a new MD to perform a ( a double?) Styloidectomy. ( sp?)

Hi! I know this might be a couple years late, but I would just like to say that my sister has been struggling with extreme pain coming from the left side of her face. She did go through a number of neurosurgeries and nobody knew I was wrong with her. She just was diagnosed with heel syndrome in January and got the surgery. They went through the throat and not through the neck. It’s crazy because she experienced pain in the throat, but nothing compared to what pain she was experiencing in her left side of the face. It’s now been three months postop and she’s finally starting to get some relief! I really hope that this is the answer.

Eagle syndrome^

@christhay05, welcome. Have you been diagnosed with Eagle syndrome?

Hello! My twin sister was diagnosed with the eagle syndrome. After almost a year of excruciating pain radiating from in inner ear. She was diagnosed with eagle syndrome. She had had all of the nerve blockers, ruled out neuralgia. She also had MVD surgery and it was unsuccessful.
The surgery for the eagle syndrome took a few months to kick in, but it seems to have worked. She’s still on a ton of medication, but the pain isn’t as bad. Thank God! If I could help anyone suffering from the same thing she was, I hope this comment reaches the right person. The pain was so bad in her ear there was talk of suicide. If anyone has any other questions about the surgery, please feel free to reach out.