1. < Ear, Nose & Throat (ENT)
Profile picture for Jackie, Alumna Mentor

Eagle Syndrome

Posted by Jackie, Alumna Mentor @travelgirl, Apr 25, 2018

My son was diagnosed with Eagle Syndrome. It took years of him complaining to Dentists and Doctors before it was diagnosed. Finally a Dr referred him too the Cleveland Clinic. They were able to diagnose it, but didn't have a Dr on staff that could offer any advice. Being that Eagle syndrome is so rare less than 4% percent have this condition and of that 0.16% show symptoms.
We found a couple of Dr's who have treated the condition. But they claim the surgery is horrible they found it creates more issues. That to hold off as long as a person can.
It is very painful at times for my son. He said right now, he can feel the Styloid pressing on his Hyloid bone.
Does Mayo Clinic have any studies or Dr's that deal with Eagles Syndrome?

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

Profile picture for lostintranslation1
lostintranslation1 | @lostintranslation1 | 6 days ago
In reply to @riverflow1 "FYI he is internationally sought after, so will have to wait I’m sure. Hope this helps...." + (show)
Profile picture for riverflow1 @riverflow1

FYI he is internationally sought after, so will have to wait I’m sure.
Hope this helps. I was diagnosed with Eagles Syndrome/ venous insufficiency
which isn’t true eagles syndrome but an enlarged styloid can impede the blood flow through the blood flow in brain. So my condition is most likely different from yours, I did a right jugular decompression surgery it he had shave off past of my styloid. So he would be able to do a styloidectomy as well
Sorry forgot to add that.

Jump to this post

@riverflow1 did you ever have the surgery done. They say I have the same thing and no one is wanting to do anything about it here in Minnesota . I’m a single mom with two kids and no family around. I’m scared of what’s going to happen if the damage continues to my carotid Artery and I’m worried about having the surgery at the same time. I don’t know what to think or how to feel about any of this.

REPLY
Profile picture for lostintranslation1
lostintranslation1 | @lostintranslation1 | 6 days ago
In reply to @sanderson7635 "I have bilateral Eagles Syndrome. There are ENT doctors at the University of Minnesota Fairview clinic..." + (show)
Profile picture for sanderson7635 @sanderson7635

I have bilateral Eagles Syndrome. There are ENT doctors at the University of Minnesota Fairview clinic that treat this. I see Dr. Hamlar.

Jump to this post

@sanderson7635 dr hamler has now retired any other drs you might know that treat this

REPLY
1 reply
Profile picture for sanderson7635
sanderson7635 | @sanderson7635 | 5 days ago
In reply to @lostintranslation1 "@sanderson7635 dr hamler has now retired any other drs you might know that treat this" + (show)
Profile picture for lostintranslation1 @lostintranslation1

@sanderson7635 dr hamler has now retired any other drs you might know that treat this

Jump to this post

@lostintranslation1
I believe he mentioned one of his partners to me....
Samir Khariwala, MD

REPLY
1 reply
Please sign in or register to post a reply.