What preparations do you make when travelling with epilepsy?

Safe travels and enjoy your visiting. My first 1 time out, my daughter and her wife were close enough for support and had contact with my friends wife, should something go wrong or just need answered. Meds, time zone same and fst adventure was great. My caregiver now is taking me places and helping like crazy. I miss the old me but I am making good headway. Have fun traveling. Seek you out on your return.

Hi @randallshields56

This is a great post about traveling. I appreciate you sharing about how you are making traveling work for you. While I don't have epilepsy, I do have other chronic health issues that require extra thought, medications, and supplies. Your post has provided me with a bit more courage to make traveling easier.

@hopeful33250 what is so funny now is that first trip i was so scared and anxiety levels through the roof . first time overnight that didn't include the hospital. my daughter and her wife were worried and i could see that. i stayed strong front and knew i could make the trip. just extra planning. like letting my friend know he didnt need to stress over my condition that i knew the avenue of events to watch for and would let him know. that was a great start seeing the registration that i had control again with some important steps. we went out to dinner two nights and the crowded place i was able to navigate better. lot of planning and talking to myself in the mirror on what i would say to those that needed to know i had seizures. what to do to help or who to contact. made myself more confident in being away, even though just a few days. was a blessing in disguise. hope something here helped someone.

@randallshields56
I appreciate the way you used self-talk and determination not to worry your family, as a way to help with your anxiety! These are great ideas.

@hopeful33250 thank you for being a volunteer and like myself having so much that has happened in your own health struggles, feel free to message me anytime if you have a question. that trip out was my first and i have come so far since. My caregiver has been critical in that area of coming back to who i use to be and how much the system can be overloaded. my daughter pointed out my subconscious anxiety and other stress related issues i had to address on my own time along with a councilor every two weeks. a long road but making it work. Thank you for all that you do. have a awesome day. its my exercise time now. Thank you again.

@randallshields56
Good Morning Randy!
Thank you so much for sharing your experience.
I completely understand that feeling of missing who we used to be. But reading your words, I can see someone who is moving forward with courage and resilience!
Like you did, I'll have a very close support on this trip, my husband.
I'm looking forward to sharing how it goes when I return from these holidays.
Take good care of yourself, and thank you again for your kind wishes.
Chris

@randallshields56
Hi Randy,
Today, I'll visit my mother and tell her about my trip and holidays. She has Alzheimer's and we've always been very close, like soulmates. I hope she'll be well while I'm away. 🙏
My father already knows about it and has given me great support, keeping me less anxious. 💜
Chris

Hi Everybody, Good Morning!
I'll be away from February 27th to March 19th and am looking forward to being completely offline — taking in the sights, tastes, and sounds around me. Being fully present is something I really treasure.
I know you'll continue sharing your experiences, questions, and support with each other, and that's what makes this community so valuable. You all have so much wisdom to offer one another — please keep the conversations going!
I'll catch up on everything when I return and look forward to reconnecting with you all then. 🌿
Chris

Time zone travel…..how do you all manage medication times when flying across 6-8 time zones? Thanks.

@med951
I cross one international time zone regularly, fortunately it’s an hour or two hours depending on the time of year ( daylight savings time). Through the course of the travel day, I adapt my med schedule to what will be local time at my destination. I take 15 pills (not all different meds) through the 16-18 hours a day I’m usually awake, so I adjust accordingly to what I’ll need by the time I reach my destination. Hope this helps or gives you ideas.