C Diff

I see this was posted in 2012. If you are still active on this subject I'd like to know how you are now. I've been suffering for 8 months and getting no answers after C Diff.

Both my wife and I had cdiff. I got it through contact with her. She had it multiple times. And was hospitalized several times. I had it 3 or 4 times. And was treated in the hospital I found out with an online search about cdiff that there's a treatment for it. The hospital that she would go to knew about the treatment. But wouldn't do it. I guess because another hospital developed the treatment in Boston. We decided that she would transfer all her care to the other hospital. She had been through enough already by that point.

The treatment is called a stool transplant. It sounds gross. But it worked for the both of us. They take a stool sample, bring it into a lab. Treat it some how or other. They put it into a gelcap pill. On dry ice. The patient swallows it and within a few days. That sample changes the bad bacteria in your gut to good bacteria in your gut.

There's always a chance that you could get cdiff again from what they told us. But that never happened to us.

@hoagie I might mention that I also had it and as a patient of Mayo Clinic in Phoenix also treats CDiff with that same procedure. I was advised about it but luckily mine responded to the initial treatment and now 7 years later I have not had it return. So there are other hospitals that also do that procedure.

have you tried the holistic aproach. go see a nutritionist if you can because one thing i have learned is that only one out of hundreds makes to much stomach acid. the heartburn or what they call "gerd" is usually from to little acid. I am extremly ill and down to 100 pounds and i cannot eat. ive been drinking smoothies with protien and vitamin powder. have had several test and yet to have a diagnosis other then ibs when i know thats not what it is. this week i will be swallowing a camera pill so that they can look at my small intestines since they couldnt find anything with the colonoscopy and the upper endoscopy but i do know that one of the big problems was from taking ant acids for far to long. So my nutritionalist put me on a suppliment called gastracid and digestive enzymes. and it did help. now i no longer eat enough to take them but will again when i am able to get back on solids. i can really relate to what your going through. my pain is constant and i am now so mal nourished i can barely function and its making me incredibly anxious. one thing that helps with the pain is achupuncture. id definatly look into alternative meds because eastearn medicine and drs have been around far longer. and western docs are simply so obsessed with money. in the medical society if your not wealthy you dont deserve to be healthy. i hate it so much and feel quite hopeless at times.

@feeble6tress I had Cdiff 4 separate times last year and was in the hospital for a total of 30 days. It is a horrible disease and really takes a toll on your body. I was given Vancomycin by IV each time and it did work for me. But as soon as I got home from the hospital it returned. My Doctor got the approval for Vowst, a fairly new medicine for Cdiff. It was very expensive but I decided to try it. Unfortunately it did not work for me and I got sick again after completing the prescription. (4 pills). I was put on Vancomycin capsules after the last episode. 4 pills a day for one month, then 3 pills per day and so on. I am now taking 1 pill a day for six months and am feeling much better with no issues. Prayerfully once I stopped the pills I won’t have a relapse. It was a real struggle for me and at times I thought I would never feel good again. My Doctor really worked with me and understood what I was going through. I hope you will be feeling better soon.

@joanns21 According to a world renound infectious disease doctor Vancomycim only gives a false negative. It does slow it down but it does not cure C-Diff. Word seems to spread much to slow to be of much help. When a person takes certain types of Antibiotics either by IV or pill form, C-Diff is often the outcome.