Head pressure is ruining my life

@charl215 So sorry it's been such a struggle. I have empathy for you and understand. I'm wondering if you've seen this video from Dr.Sletten of Mayo Clinic's Pain Rehabilitation Center?

Central Sensitization Syndrome:
Source: YouTube https://share.google/9aBFpl6B3LUpzaq3Q

It may be worth a watch for inspiration and learning about chronic conditions like CSS. I know how daunting it is to keep trying different paths to no avail.

Is pain rehabilitation something you may consider?

Just watched the vid mentioned above by Mayo Clinic's Dr. Sletton. Interesting info.

I know you said you got an MRI, but on my first brain MRI they missed my Chiari…

There is a special type of MRI called CINE (moving pictures) that will look at the flow of cerebral spinal fluid, to view any obstructions.

You could ask your doctor for a brain MRI (with & without contrast With CINE) to look at a possible Chiari malformation or Chiari Ectopia, or see if there is CSF obstruction.

I had to get multiple brain MRIs in order to properly see the Chiari. It went from not there, to 1 mm, to 3 mm on various Brain MRIs… Also If you do it, go to a hospital in your main city’s downtown and Not the surrounding area. For example, in Atlanta, go to a hospital inside Atlanta, not in the surrounding suburbs. These will have the highest resolution, MRIs and best staff.

Hi @ellesea01, what did you find most interesting?

Any advice please would be greatly appreciated. 49 year old male with severe head pressure / burning sensation in head. Tinnitus, dizziness, left side of face goes numb, insomnia. Ref to neurologist but told told my GP I have to take Propanolol 3 x a day. That is not a solution for severe head pressure. I’ve been to hospital many times and they say take painkillers blah blah. GP says it’s anxiety bla blah. It’s ruined my life. Can’t do anything.

@robin76 I don't have the left side of my face go numb but i do have tinnunitis,dizziness and stuttering going on and severe head pressure/burning feeling going on.I hope you find out whats going on.I am doing EEG tomorrow and MRI next Monday to see if they can find something out.

@larry68 I’ve had mri and all came back fine. I’m desperate for answers but nobody is listening. All I get told is it’s anxiety. 100% not anxiety

@robin76 I am googling and trying to diagnose myself at the same time.I think myself it has to with accident i had a couple and it always starts at base of my skull.So my nerves in my neck are sending all these nerve issues

I am so sorry you are dealing with this severe head pressure, along with your other difficult symptoms. I don't have an answer, but I can share my experience. For six years, I have had Long Covid constant head pressure, tinnitus, and some tingling in the left side of my face. In the morning, my head pressure is at a 5-7 out of 10 level, which does not cause me huge problems. As the day goes on, the level is usually 9 or more. Too much exercise, too much socializing, and too much computer work increase my head pressure. I try to place those activities. I do a half-hour body scan, where my head pressure gets worse, but after that relaxation, the head pressure is a bit better.

My head neurologist has had me try everything used to treat migraines but, so far, nothing has worked. I am trying nortriptyline now and will get a second round of Botox injections in April. A physical therapist relieves some of the pressure for a couple of hours by manipulating my upper back and neck muscles. I have a Theracane device that I use to massage those points in my back. Soon, I will try dry needling in the neck and back. I have normal MRIs, but my neuroquant MRIs show some brain shrinkage--maybe Covid related but also age (I'm 65).

I hope this helps a little. It sounds like something hit our brains and nervous systems. Again, I am so sorry, and I hope you get some relief soon. Please take care. It is very difficult.

@robin76
I am so sorry you can’t get relief. Doctors like to blame many things on anxiety. I have the same symptoms as you along with balance problems. I do have a meningioma near my cerebellum but doctors also say my symptoms are from anxiety. Hope you can get some answers.