Head pressure is ruining my life

@mensch00
Thank you kindly for sharing your story about your daughter with us.
It was extremely informative and you brought up many valid points.
I have experience with Reversible Cerebral Vasoconstricting Syndrome after experiencing a thunderclap headache in 2020 and have never been the same since, it kicked off 9 months of continuing severe migraines. Nothing helped, the doctors stumped as to what medication to give me. I more than understand "head pressure, going to explode", head "spasms" that are excruciating...thank goodness lasting only seconds, any longer it's a definite 911 call.
I will be re-reading your post several times to see if anything can be applied to me and be helpful. Thank you again for taking the time to write your post. I hope your daughter continues to be pain free.

@briarrose she's not pain free, but the constant pulsing headache is mostly gone now. She still has a lot of brain inflammation. There is an excellent neuro - pain researcher, Jared Younger, who researches neural inflammation and symptom relief for long COVID, fibromyalgia, mecfs, and gulf war patients. He says that the microglia of patients are always flaring... which they should only be doing when you are fighting off a big infection / virus. But they never flare down. So he researches ways to calm down the microglia. People with these autoimmune conditions also have mitochondrial dysfunction and blood circulation problems. Often their brain oxygen levels are getting a bit low, lije when you are hiking in high altitude, and Younger also shows that their us a lot of lactic acid in their brain. This all leads to a feeling that your head is full and swollen. That's why we keep looking into safe anti inflammatories. She also has peripheral neuropathy now, from the months of excruciating pulsing head pain. Looking into getting that treated. Younger's excellent YouTube channel: https://share.google/BDfTtRvrrpKNBWopp

If you have any base of skull pain you could have upper cervical instability. Aside from taking away all rcvs triggers the best treatment we've done has been MLS laser therapy. You can find this at regenerative medicine practices and some chiropractors and orthopedic doctors. It's a very high powered cold laser that can penetrate into your ligaments and improve blood flow and decrease inflammation, promoting ligament healing. She's been doing this twice a week and it has greatly reduced her neck pain, which can also trigger headaches. So she was bed bound ... Stuck lying flat for three mo. But now she is sitting 5 hrs a day and walking around the house. The neck ligament injury had caused something called a craniocervical pannus, which is like a puffy callus at your brain stem (because the top of her spine was bumping into her brain stem, so the body created a callus). But the pannus can decrease blood flow and cause neurological problems. Ask your docs to look for one. Very visible on standard profile brain MRI, but often overlooked. 60 percent of people with rheumatoid arthritis also have them.