@karukgirl thank you! which open heart surgery did you have and what can you share that would be helpful to know about it?

@karukgirl thanks so much for these links. I will read them.. did you have alcohol ablation surgery or some other kind? I don’t think alcohol ablation is considered open-heart surgery so you must’ve done something else.

@karukgirl thank you. When I asked my doctor about newer drug, she said I will stay on Camzyos.

@karukgirl Once I find out more after my cardiac MRI and have my first good talk about things with my cardiologist I hope I can make a sound decision of how to proceed. I feel like meds are just putting a bandaid on the problem and at best I will be 'hoping' for doing better at bringing groceries in from the car! I have higher goals than that since I have a garden and that takes a little bit of physical effort. Right now my thoughts are to cut right to the chase and ask about the septal myectomy surgery, which might be open heart. If I just bit the bullet (if I qualify) and get it done, then maybe 6-8 months or so, I am hopefully recovered. If there are no complications. I already have a pacemaker from the last cardiology group, who turned out to be somewhat incompetent. I think they just flipped a coin between pacemaker and mitral valve repair. I did specifically express to the dr I had shortness of breath ON exertion. First clue I'd say for this condition we all share. I think I dodged a bullet at that place. The dr came in and said 'we think a pacemaker will benefit you'. WE THINK? I am still new to all this and adjusting to it.