Living with Parkinson's Disease - Meet others & come say hi

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

You’re welcome, there’s not much I can contribute because I’m a newbie here. But when I see something where I can I do. Lol.

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Profile picture for Chris @chrissymc

You’re welcome, there’s not much I can contribute because I’m a newbie here. But when I see something where I can I do. Lol.

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@chrissymc
As you are new, feel free to ask questions or post about any concerns you have. How are you feeling?

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I’m doing fairly well, still have the tremor and the medicine that she’s given me. I’m only on a low-dose I believe. She may have to update it to get it under control. Good. I am almost off the Abilify, which is a good thing so that soon I should be able to be put on some kind of dopamine medication I would think. Mentally I’m settling in to the reality of it. Not letting it make me depressed or anything. I guess I really don’t have any questions per se, I don’t know my skin is very dry my arms and legs. I don’t know if that’s part of Parkinson’s symptoms or if that’s just because it’s cold where I live and dry and that’s just the winter time thing. Thanks for asking though.

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@chrissymc
As you are new, feel free to ask questions or post about any concerns you have. How are you feeling?

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@hopeful33250 how are you doing?

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Profile picture for Chris @chrissymc

@hopeful33250 how are you doing?

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Thanks for asking, @chrissymc. I am doing OK. I have PD for several years, and I've learned the importance of regular exercise along with the meds. I've also learned not to tire myself out. If I do too much physically, I always end up with more severe symptoms.

Having PD is a learning process. I guess I've learned to accept (and live) with the limitations that go along with the disorder. It took me a while to accept it, but I'm doing pretty well now.

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@chrissymc
As you are new, feel free to ask questions or post about any concerns you have. How are you feeling?

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@hopeful33250 Good Morning. I just discovered this group. My husband has PD for 8 years. We live in Rochester MN.
I wanted to let you and others know that we have a great Support Group here in Rochester MN at 125Live. We have a meeting this Thursday Feb 19 at 1:30.
We meet nearly every 3rd Thursday. You do not need to be a member of 125Live to attend.

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Hello. My husband has PD for about 8 years.
We are in Rochester MN and wish to inform about a Support Group in Rochester at 125Live.
3rd Thursday of the month at 1:30.

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Profile picture for sheilaz @sheilaz

Hello. My husband has PD for about 8 years.
We are in Rochester MN and wish to inform about a Support Group in Rochester at 125Live.
3rd Thursday of the month at 1:30.

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Hello @sheilaz and welcome to the PD support group on Mayo Clinic Connect. I appreciate you joining this group on your husband's behalf. As this is your first post, please share a brief update on his PD journey, if you are comfortable doing so. For example, how long has he been diagnosed, and what are his most troublesome symptoms?

I look forward to hearing from you!

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Hello. My husband now lives at a care facility for 2 years due to balance issues from PD. He is now in later stages. I just discovered this group and look forward to discussions.

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Profile picture for sally2026 @sally2026

Hello. My husband now lives at a care facility for 2 years due to balance issues from PD. He is now in later stages. I just discovered this group and look forward to discussions.

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@sally2026 Thank you to those that responded and to those that may have thought to respond. Appreciated.

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