I saw the surgeon. More confused than ever.

Thanks for your reply.
I am seeing an Oncologist at the Princess Margaret Hospital, Toronto. Best in Canada. I'm don't know if she specializes in NETS, but I think its as close as I can get.

@carver1164
I understand that is an excellent cancer center!
This may be another option which I found on the NANET site. There is a newly established multi-disciplinary specialized neuroendocrine clinic at the Sunnybrook Odette Cancer Center in Toronto: Here's some info on a NET specialist there that I copied from the NANET site. http://www.nanets.net :

Simron Singh, MD, MPH, FRCPC
President

Medical Oncology, Odette Cancer Center at Sunnybrook Health Sciences Center

Dr. Singh is a medical oncologist at Odette Cancer Center at Sunnybrook Health Sciences Center in Toronto, Canada. He is also an professor at the University of Toronto. Dr. Singh completed his B. Sc as well as MD at the University of Alberta in Edmonton, Alberta. He completed postgraduate training in Internal Medicine at Queens University in Kingston, Ontario, Canada and Medical Oncology at the University of Toronto. After completing his clinical training, Dr. Singh completed his Master's degree in Public Health from Harvard University in Boston, MA, USA. His research interests include neuroendocrine carcinomas as well as population health and cancer care utilization discrepancies.

Currently, Dr. Singh is co-head of a newly established multi-disciplinary specialized neuroendocrine clinic at the Sunnybrook Odette Cancer Center in Toronto, one of the first of its kind in the region. He is involved in numerous activities in the care of neuroendocrine cancer including the role of ki-67 as a prognostic marker and the utilization of health care resources in the diagnosis and treatment of NET patients.

@lindabees wowza!
Thank you so so much for this. Such a valuable share.
I will definitely look i to this.
Thank you