I saw the surgeon. More confused than ever.

Posted by carver1164 @carver1164, Sep 3 2:23pm

Hi everyone.
After a very long month, I finally saw a surgeon for my 8mm si NETS. I am symptomatic. I was totally expecting to get a surgery booked to only realize, the surgeon wants another PETscan. I'm not sure why, since my last one was negative. The tumor was found by CT enterography. Anyway, she is also putting me on octreotide for a month and will reassess my symptoms.
I'm confused about the PET scan, unless its for mapping. But if it doesn't show up like the last time.....and doesnt octreotide work right away? Why a month...I'm a bit frustrated.
Thanks for hearing me out

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carver1164 | @carver1164 | Sep 9 11:30am

In reply to @tomrennie "That sounds like a good plan. How do you feel about it?" + (show)

I feel ok...I have let go and will do whatever the dr. wants. I'm actually just happy and grateful to have a plan....thank you. I'm getting the shot on Monday.
I'm nervous about the diet restrictions. Doc said NO FAT...no more chicken wings I guess...

Turkey, Volunteer Mentor | @tomrennie | Sep 10 8:29am

In reply to @carver1164 "I feel ok...I have let go and will do whatever the dr. wants. I'm actually just..." + (show)

It is nice to have a plan. Good luck with the shot. You will learn to adapt to the diet. Hopefully, the plan works and the rigid restrictions are short term. I can relate on the wings especially now that football season has started. But I got so sick that I didn't like food, even wings, for a long time. You don't want that. So take care of things now and imagine how good those wings will taste later. Maybe washed down with a cold beer haha.