I saw the surgeon. More confused than ever.

Thanks Tom Rennie for your interest.
It is written in several articles that a possible 10-20% incidence of heart failure due to Lenvima and considering I never had any heart problems, and that my arteries were excellent except I had a blockage in my right artery out of the blue with no indication of heart pain, I suspected it was due to my NETs going out of control. My symptoms were the same as the NETS, only stronger, so the paramedics were slow to take me to the hospital. Likely, this is why one of the Cardios kept repeating that I was amazing. Sounds good, but I wouldn't want to repeat that experience again. BTW, it wasn't determined that Lenvima was to blame, just suspected. IDK.
I will be going on 2 treatments that will not be harmful to the heart. Good luck to you.

I forgot to mention that my Oncologist brought this up and immediately requested I stop taking Lenvima.

I understand. The chemo that I am on has some potential for for heart issues. So, I get echocardiograms to make sure everything is ok. What two new treatments will you be going on?

Actually there are at least 3 isotopes used for PET scans. The newest thats been approved as far as I know is Copper-64. I've had both Gallium-68 and Copper-64 several times. The third is Florine-18. I have not had the pleasure of that one. To my eyes as a patient the Copper-64 is actually the best image for seeing the Somatostatin Receptors.

Everolimus and a Clinical Trial for Alpha PRRT.

Well I guess it depends on your age and otherwise health too. It's not risk free to do a major operation.

Hi everyone,
First I would like to thank everyone for their help. It sure sounds like you are all so knowledgeable about this.
UPDATE: I saw my Endocrinologist oncologist today. This is the plan.
The surgeon wants another gallium PET. I am also starting on Lanreotide for 3 months.
Since my tumor is small and tests are not conclusive my case will be going before the "tumor board" of doctors to decide the next steps.
That's all I know
Again thanks to everyone

Please keep us posted on your progress. I am excited for you with the trial. How are you feeling about it?

That sounds like a good plan. How do you feel about it?

Thanks Tom, considering my two bouts of Beta PRRT resulted in tumor growth, I heard the opposite is for the Alpha (I thought A came before B, but whatever), so I am very excited to participate. The trials are being brought to Vancouver at the end of this year. I will follow up on Mayo Connect.