Throwing money away: Balancing between autonomy & watchfulness

Posted by captainoftheship @captainoftheship, Feb 5 12:36am

My husband went into the bank today and withdrew one hundred dollars out of his debit account. An hour later he realized he did not have the money on him and thought he left it near the teller's cage. We went back to the bank with no trace of it being left behind. It's the only account he has access to with limited funds in it. Do I even need to monitor him going in and getting money from a teller? I've tried to honor some autonomy in him but realize it's no longer safe to give him any autonomy around his finances. Or do I just let this go and be more diligent. I've already used my durable power of attorney over his finances due to his impulsive behavior and poor executive functioning and have moved his access from the joint accounts we previously had. He's relinquished his credit cards to me and we've closed those accounts. Meanwhile he still doesn't see that he can no longer track money. Do I have to escalate my control or let this faux pas go?

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Profile picture for LBD Wife @pdraayer

My husband with LBD doesn't leave the house alone anymore. However, we went through a time when he was ordering items off the internet and charging them on his credit card. Many t-shirts and random items. Sometimes the shirts were the wrong size, or other items weren't what he thought they were, so I had to return them. We have an agreement now that if he wants to order something, he should show it to me first. Not necessarily for approval, but to review and make sure it is what he thinks. After a credit card bill of over $300, he agreed to this arrangement. It works for now.

I have a POA for finances and healthcare, most bills are in my name or both, and I manage the bank accounts.

It's a hard fine line to walk between independence and dignity and protecting your finances.

Caregiving is hard, and we grieve for the partnership we've lost. It's tough not to get resentful and angry about taking on additional responsibilities. I try to focus that resentment and anger at the disease and not my husband. I'm not always successful.

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@pdraayer LBD and Captain~ you are doing very hard work. Mental stress on top of physically being tired much of the time is a constant drain with seemingly no place to turn for Help that really does help.

Have you tried volunteer or paid people to come to the home so you can get away for a few hours? I'm considering it, and writing up lists for a caretaker to refer to for issues; medications, food that's allowed, going outdoors, activities that could be beneficial.

None of us know what's just around the corner, and that's part of the stress each day. I, like LBD, try to focus on anger at the diseases, not at the person, when so many things go wrong. ... like clothing thrown in the wastebasket instead of the laundry, that kind of thing keeps me watchful. It's constant.

Reading what you've shared here does help me - knowing I'm not the only one struggling, and some containment ideas too.

I so much want to keep my DH alive, for those few times each day when we laugh together, when things seem normal, when life was good. Oh the memories, we have to hang on to those.

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I understand the sadness in realizing your loved one no longer has the capacity to manage your financial matters, especially if he has been the one to do so all along. Last year I was advised to get my husband's permission in writing for me to manage his IRA which is in his name. Our financial planner came over and suggested to him that this was a good idea and he agreed. Now it is I who does all the financial chores including paying bills, making the necessary purchases and gathering the materials for the tax returns. also house maintenance and repairs, same for our cars. He does not drive now and can no longer use his phone or the internet so I don't have any issue with him spending money. Recently his driver license expired and I did not renew it. He can use his passport for any ID requirements though other than new doctor's appointments, I can't think of when we would need an ID. Last night for the first time in a very long time I was near tears. I just felt completely spent and fantasized about a fun getaway just me, no responsibilities, maybe get drunk and sleep for days. Just thinking about it made me feel better!

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Profile picture for ocdogmom @ocdogmom

I understand the sadness in realizing your loved one no longer has the capacity to manage your financial matters, especially if he has been the one to do so all along. Last year I was advised to get my husband's permission in writing for me to manage his IRA which is in his name. Our financial planner came over and suggested to him that this was a good idea and he agreed. Now it is I who does all the financial chores including paying bills, making the necessary purchases and gathering the materials for the tax returns. also house maintenance and repairs, same for our cars. He does not drive now and can no longer use his phone or the internet so I don't have any issue with him spending money. Recently his driver license expired and I did not renew it. He can use his passport for any ID requirements though other than new doctor's appointments, I can't think of when we would need an ID. Last night for the first time in a very long time I was near tears. I just felt completely spent and fantasized about a fun getaway just me, no responsibilities, maybe get drunk and sleep for days. Just thinking about it made me feel better!

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@ocdogmom Yes. This is a hard boat to be paddling. The financees, the driving, now a potential move across the state and selling and moving from an area weve lived in for 40 plus years. But for today, I'm heading out to get a Starbucks! At least I still have space to do that. And I'm looking forward to watching the SuperBowl tomorrow. Live in WA, from New England. Not tellin' who im rootin' for.

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Profile picture for captainoftheship @captainoftheship

@pdraayer thank you for sharing and validating that it is a hard fine line to walk between independence, dignity and protecting finances, The disease is brutal. My husband can't separate out the disease and who he is and self deprecates when he sees me take responsibility. It's hard for me to sort out what he can't and can do as the disease is fickle at best until each day I get a wow which feels like a gut punch and I say to myself, Really? And then I tighten the reigns to keep him safe as well as our finances. Driving is being addressed now too. He is able bodied and scores moderate to severe with cognitive decline on the Global Dementia scale. It feels like there is no "us" anymore. I have so much decision fatigue. This little tome here feels like a journal entry, a safe place for me to feel seen and for me to see myself. Thank you for seeing me here.

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@captainoftheship I'm sorry, it sounds like you're having a really bad day. There are too many trials and tribulations that pop up in our surprise life. Ugh, the self deprecation is horrible, just makes you feel crapier about everything you're going through and more alone, again. I'm feeling the no more "us", as well. Decision fatigue is a good description of one of the many issues, and it's not just the decisions, H doesn't think about the many little things he used to do for you that you just have the take a breath and do yourself now. adding to the overall load.
You are seen. Aren't we all lucky about one thing, we understand each other and always have this place to unload.

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Profile picture for lkbous @lkbous

@captainoftheship I'm sorry, it sounds like you're having a really bad day. There are too many trials and tribulations that pop up in our surprise life. Ugh, the self deprecation is horrible, just makes you feel crapier about everything you're going through and more alone, again. I'm feeling the no more "us", as well. Decision fatigue is a good description of one of the many issues, and it's not just the decisions, H doesn't think about the many little things he used to do for you that you just have the take a breath and do yourself now. adding to the overall load.
You are seen. Aren't we all lucky about one thing, we understand each other and always have this place to unload.

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@lkbous
Thank you for seeing and hearing me.

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