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Do Bronchiectasis and MAC go together?
I was diagnosed with this in January. Had pneumonia in November. My dr didn't tell me to get a sputum sample til my second visit this past week. He started me On nebs and aerobika treatment. I had a second Ct scan and am not sure if there were changes. Does bronchiectasis and MAC go together. It seems like most people here talk about MAC and not bronchiectasis?
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@peggyri Peggy, I have added to my File Cabinet .. what great resources for our Community .. thank you so much .. when we share we ALL profit! Hugs to you! Katherine
There are some great resources from the UK as well as Australia. In case anyone hasn’t seen these:
https://www.chss.org.uk/documents/2013/08/c4_bronchiectasis-pdf.pdf (Good overall explanation)
http://bronchiectasis.com.au/ (There’s a lot under “Resources”)
@russt, Hello Russ. Haven't heard from you since May, and I am wondering if you were able to get an appointment with Mayo? I hope that you did. Are you still taking monthly maintenance antibiotics? I apologize for not checking back in with you sooner. How are you doing right now?
WW, I have gone thorugh my tipical "try this try that" cycle. My insurance doesnt pay for any out of network medical care and I can not get a good idea how much just a consult would cost since most conults want their own teats and labs, etc. If I could
get a firm dollar amount I would feel more confident about making an appointment. If you have some information about expensives please let me know. Also let me know how you are doing, I hope well. Looks like the 3rd Gulf storm is headed our way, but is forocast
to be less powerful. If the storm that dumped all that rain into Houston had hit New Orleans we would still be pumping water out of here until Christmas. Our pumps are not enough to handel even medium amounts of storm waters. jo
Russ
@russt, Hi. I am sure you are ready for the hurricane season to end; me too. What city do you in or near? If you call down to the Mayo Clinic, you can ask for the charges of a good consult and pricing for chest x-ray, lab work, & lung function test. They are a non-profit institution, so their charges are very reasonable. To make an appointment you can call 904-953-0853 and ask that person also who you can talk to about pricing. Let me know how it turns out.
In my particular case, my pulmonologists think my arthritis (anklyosing spondylitis) has caused my rib expansion cartilage to stiffen, not allowing enough air to get to the farthest reaches of my lungs, where MAC can flourish.
I was first diagnosed with bronchiectasis by a broncoscopy. The sputum from that showed MAC.