Hashimoto’s but "normal" thyroid blood work
Hello, I'm a 47 year old Male diagnosed with Hashimoto’s about 3 years ago. I've been suffering for years with symptoms like heart palpitations, severe constipation, diarrhea, brain fog, general fatigue, also waves of fatigue accompanied by slight hand tremors. These symptoms seem to be closely tied to certain foods and a histamine intolerance or MCAS. Food intolerance/allergy testing results show no allergies.
The specialist I went to told me that these symptoms must be caused by something unrelated to my thyroid because other than having antibodies that confirm Hashimoto’s, my thyroid is working fine (normalTSH,T3,T4) and to get a blood test every six months to check those levels, and when those start to go out of range she could treat me for it.
I believed what she said and started pursuing other avenue's to figure out what could be wrong with me. I've been to many doctors and had a ton of blood tests but nobody could find anything else wrong with me.
After reading things online and seeing a couple videos about this. I'm starting to wonder if these symptoms are from Hashimoto’s after all? Any help is greatly appreciated.
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I didn’t mean to mislead you. By saying it’s not separate, I only meant it only affects the thyroid, as does hypothyroidism does. However, I have seen several endocrinologists and none have said anything about controlling it through diet. I take 125mcg Levothyroxine (that’s what Synthroid is) and it controls my Hashimoto’s quite well. I don’t eat gluten, dairy or soy anyway to help control my mc.
@lkirnbauer
I have had Hashimoto's for the past 15,5 years with lower thyroid hormone levels (nearly normal). No specific symptoms were associated with Hashimoto's for the first 12 years. Then, 3,5 years ago I was diagnosed with systemic sclerosis/scleroderma. This is when it started: fatigue, palpitations, food allergies, skin thickening, and joint stiffness.
Looks like most of the symptoms described in the original post by @tree98, may be coming not only from Hashimoto's but from other autoimmune conditions involving GI (IBD, Crohn's) and other systems. A full panel of autoimmune tests may be helpful: rheumatology, immunology, gastroenterology.
People with autoimmune conditions frequently have malabsorption causing iron deficiency and multiple vitamin B and D deficiencies leading to anemia and fatigue. It may be worth checking full metabolic panel.
Spectracell Labs and some others do in-depth micronutrient testing that shows where exact deficiencies are coming from, how the body is failing to utilize nutrients and produce enough energy. Insurances do not cover their tests - all out of pocket.
https://www.spectracell.com/
I also suffer from Hashimoto’s and have eliminated eating certain foods due to their effect on my body. They are inflammatory foods and were blowing me up like a balloon! I have eliminated eating them and have lost the bloat. I also suffer from Hypothyroidism and take medication for that. There is not a medication to treat Hashimoto’s only. I also have had a food sensitivity test done and found that I have high histamine in my body, so I’ve eliminated eating all Nightshade foods. I stopped eating the Nightshades for about 6 months and now can eat them on occasion. Nightshades are a group of foods that are inflammatory to me like tomatoes, potatoes, zucchini…. I wish you well on your health journey.
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1 Reaction@altabiznet I don’t have GI problems, any longer as I had 18” of my colon removed in April of 2022 due to severe diverticulitis. After 3 years, I finally am having regular bowel movements! As I mentioned, I no longer eat gluten, dairy or soy products and most Nightshade foods due to food sensitivities and high histamine. I take several supplements to help nourish my body and outside of having no taste or smell, I am getting better, slowly. I have had a food sensitivity test done and that’s how I found out I had food sensitivities, which I kind of already knew I had. My insurance which is Medicare, paid for this.
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1 Reaction@lkirnbauer
Hi
Interesting story on your health. Thank you for sharing. I will try eliminating the foods you spoke of
We all keep pressing on and upward
Donna
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