Pseudomonas Sinus Infection

Posted by namar @namar, Feb 20, 2024

I have had recurring Pseudomonas Sinus Infections since summer 2023. I started getting these about 6 months after my sinus surgery in Dec 2022. I have been on and off antibiotics since summer 2023. I have taken Levaquin and Ciproflaxin. It seems that Levaquin works the best. I am also doing Tobramycin sinus rinses but as soon as I am off the meds, it comes back. My symptoms are green sinus drainage, a lot of it. I had a CT scan done a few days ago 2/17/24 and the results came back submucosal thickening of my sinuses. At this point, I need a different type of treatment because pills are not keeping the infection away. I am worried that this could spread to the brain? if it were to spread to the brain, would that show on my CT scan?

Can someone please share what helped you get rid of your Pseudomonas Sinus Infection ? it appears that Levaquin and Tobramycin rinses aren't working for me. I read online that some people have had to take IV course on antibiotics. I have a follow up with my ENT on 3/7/24 and will ask him about the IV meds as well. I also read online where some people have asked to be referred to an infectious disease specialist. Any success stories of treatment would be great. I have anxiety as well and I am just concerned this will spread to my brain??

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Profile picture for lindabreathless @lindabreathless

@toujours I also have pseudomonas in my sinuses and have had sinus surgery. I use the Neil Med bottle sinus rinse with their sinus salt twice a day to keep it under control. I need to do this pretty much forever. It works really well for me…

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@lindabreathless
Thank you for your comments. Are you able to offer how long you have had the pseudomonas and if it happened after the sinus surgery. Have you had many outbreaks and have you been able to recover from a cold without medicine? I have had repeated cultures and there is always something there, if not pseudomonas, (4 times), then heavy growth candida, as well as heavy growth bacteria that the ENT and infectious disease doc had never heard of: chryseobacterium indologenes and citrobacter koseri. What drugs have you taken to get rid of the pseudomonas. I have used: citro oral twice, levoflox oral once, gentamyacin compound twice and tobramyacin compound once. (all during the last 15 months, which have taken a tole on my overall health)It has been a life changing experience at 67 to have been otherwise healthy and now ridden with bacteria, difficulty smelling and oral medicine side effects.
Thank you for any additional insight you may want to provide.

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Profile picture for irenea8 @irenea8

@susanp64
Good question Susan. Yes I have tried it. At first I used 3% saline for just 5 minutes (not using the entire vial). Then I switched to 7% saline again for just 5 minutes. I did it about a week but noticed no improvement of any kind so I stopped. I might try again at some point. And that does not mean it would not help someone else.

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@irenea8
Thank you Irenea; I posted comments under @lindabreathless, but if you have any follow-up I would be in appreciation.

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Just to mention that you will never "get rid" of pseudomonas. But knocking it back is possible for most people. Sounds like you need to give your system a rest from treatments but you could ask your Dr about IV options that might help with pseudo in sinus area (Ceftazimine or?). Certain ones might be better for sinus infections.

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Profile picture for irenea8 @irenea8

@susanp64
Good question Susan. Yes I have tried it. At first I used 3% saline for just 5 minutes (not using the entire vial). Then I switched to 7% saline again for just 5 minutes. I did it about a week but noticed no improvement of any kind so I stopped. I might try again at some point. And that does not mean it would not help someone else.

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@irenea8 How interesting that I just came across this . I feel like the crud I have in my throat in the morning is coming from behind my soft palate. I have pseudomonas and Absessus. I nebulizer 3% usually once a day. Sometimes a mix of 3 and 7. Already been through PIC lines and antibiotics 3 times. On a whim, I started exhaling through my nose. I also cup my hand over the mouthpiece and inhale through my nose on occasion. My thought being the same as yours, to knock back whatever is going on up there. I'll have to investigate the Pari Sinus Star. I've been considering going to an ENT, but ....
Thanks for sharing what makes my experiment make sense

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Profile picture for bamaqueen @bamaqueen

@irenea8 How interesting that I just came across this . I feel like the crud I have in my throat in the morning is coming from behind my soft palate. I have pseudomonas and Absessus. I nebulizer 3% usually once a day. Sometimes a mix of 3 and 7. Already been through PIC lines and antibiotics 3 times. On a whim, I started exhaling through my nose. I also cup my hand over the mouthpiece and inhale through my nose on occasion. My thought being the same as yours, to knock back whatever is going on up there. I'll have to investigate the Pari Sinus Star. I've been considering going to an ENT, but ....
Thanks for sharing what makes my experiment make sense

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@bamaqueen
It gets a bit complicated since Pari has a Sinustar 2 and the older model Sinustar. The nose piece is different in each one. The older model send the mist up both nostrils while the newer system sends it up one nostril at a time. So far it does nothing for my large amounts of purulent mucus that seems to be mostly coming from my throat area. But I suppose that could be bubbling up from the upper respiratory system?

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Profile picture for toujours @toujours

@lindabreathless
Thank you for your comments. Are you able to offer how long you have had the pseudomonas and if it happened after the sinus surgery. Have you had many outbreaks and have you been able to recover from a cold without medicine? I have had repeated cultures and there is always something there, if not pseudomonas, (4 times), then heavy growth candida, as well as heavy growth bacteria that the ENT and infectious disease doc had never heard of: chryseobacterium indologenes and citrobacter koseri. What drugs have you taken to get rid of the pseudomonas. I have used: citro oral twice, levoflox oral once, gentamyacin compound twice and tobramyacin compound once. (all during the last 15 months, which have taken a tole on my overall health)It has been a life changing experience at 67 to have been otherwise healthy and now ridden with bacteria, difficulty smelling and oral medicine side effects.
Thank you for any additional insight you may want to provide.

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@toujours I’m sorry your having this issue. We’re about the same age. To answer your questions; I have had pseudomonas for about 35 years+. I was prescribed Colistin (Colistimethate) which I’ve been using for many years. I started with tobramycin, but slowly lost some hearing. When I had exacerbations I took Cipro or Levaquin to clear it up. Sometime I’m prescribed augmentin to clear up other bugs I’ve picked up. The sinus surgery came just a few years ago long after having pseudomonas. I do saline nasal rinse twice a day to keep bacteria at bay. I exercise, do airway clearance and make sure all of my apparatuses are clean. I work closely with my pulmonologist as things start to go off track. I hope this helps as we’re all different in what works for each of us. I hope you feel better. Feel free to reach back out.

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Profile picture for irenea8 @irenea8

@bamaqueen
It gets a bit complicated since Pari has a Sinustar 2 and the older model Sinustar. The nose piece is different in each one. The older model send the mist up both nostrils while the newer system sends it up one nostril at a time. So far it does nothing for my large amounts of purulent mucus that seems to be mostly coming from my throat area. But I suppose that could be bubbling up from the upper respiratory system?

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@irenea8 with the new sinustar2 does it mean you need to do two separate inhalations one for each nostril? I thought I would buy it for my husband

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Profile picture for lilianna @lilianna

@irenea8 with the new sinustar2 does it mean you need to do two separate inhalations one for each nostril? I thought I would buy it for my husband

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@lilianna
I watched a video (cannot remember where sorry) and yes two separate with the sinustar2. I concluded after reading up on the difference between the sinustar (older model) and the sinustar2 that I personally would prefer the original sinustar. But as stated earlier it did not seem to do much for me.

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