Anyone have Athsma & Bronchiectasis?

@kaypnw

Been on allergy shots since I was 2 years old. 69 now. They help immensely. Tried to get off 2 times over the years and found myself in the emergency room both times. Allergy shots will change your life. They work!

Hi Lynn, My local pulmonologist diagnosed me with asthma about 12 years ago. 20 years ago I was diagnosed with very mild BE and reactive airways at NJH. I went to NJH last May and the NOx test and the methyl choline challenge came back negative for asthma. Since I was testing positive for M. Abscessus NJH wanted me to taper off my Trelegy and advised me not to use inhaled steroids, which I did. NJH Pulm suggested I use Anora (or Anoro), my insurance would not pay for it. My local Pulm agrees that I have BE but still believes I have asthma. So at this point, I'm just confused. I now use Airsupra, but only as needed. Fortunately, I can go days and even weeks without using the Airsupra. I am hoping my insurance will cover Brinsupri, so I can get started on that. If taking Brinsupri helps me with my inflammation, that should tell me if the inflammation is caused by asthma (or reactive airway disease) or BE. This is just my experience, I know many are diagnosed with both asthma and BE but I think some people with BE might be misdiagnosed with asthma-since inflammation is a symptom of both.

@kathyjjb
Hi Kathyjjb
You have had quit a history, being new to all this I had to looked up much of what you went through. I hope your insurance will allow the medications you need. Five years ago I had pulmonary embolism with many very large blood clots that have not all disappeared but have solidified and have caused irritation in the lungs. That is when all the problems with my lungs started, they said I now have Asthma and what I found out from the last CT scan that the bronchiectasis was worse than the last scan, that is when I found out that I had it. I have been tiring to find out if the problems in my lungs are from the old blood clots and I have had know luck, my doctor just ignores my question and I can find nothing on the internet.

ct scan

@lreid51
I made a mistake it is 4 teaspoons of honey. I hope the brain fog will get better

@lisalucier
I made a mistake.
It is 4 teaspoons of honey
I hope this brain fog gets better soon

@lreid51 Hi Lynn, Bronchiectasis is primarily the result of chronic inflammation. There are many diseases that can cause BE: asthma, cystic fibrosis, COPD, chronic infections, etc. I would think if the blood clots were causing irritation, they were also causing inflammation. Disease symptoms like inflammation and coughing will make BE worse. So BE will progressively get worse (though for many the new drug Brinsupri is hoped to stop the progression). As for the asthma, have you had the Exhaled Nitric Oxide test? The Methacholine Test? Do you have a NJH certified BE Clinic in your area? NJH is considered the top pulmonary clinics in US for BE and many of us on this site have gone there. Extremely thorough. In fact, one of the conferences I viewed, Dr Daly from NJH stated that most of the patients that got to NJH are referred by the certified BE Clinics. I still have my local doctors, but my NJH doctors are my specialists. My local ID doctor told me she has my NJH ID doctors cell phone number in her phone contacts-and they talk. You should be able to find a good info on Brinsupri and how it works. Just google: "How does Brinsupri work".

I know little of this but I certainly will look into it and I am expected to see a Respirologist in a month or two and I hope who ever it is I will be able to get the help I need. I thank you for all your help.

@lreid51 try Mullein tea. It helps to thin out the mucus