CLL Treatment side effects are wearing me down: Anything I can do?

Posted by fabianfriedman @fabianfriedman, Dec 21, 2025

I am a 78 year old male living in Southern California. I was diagnosed with CLL in Jan 2022 and told to wait and watch. In October 2025 the waiting was over. I am being treated at Desert Hematology in Rancho Mirage with cycles of Chemo and Saline infusions. I completed Cycle 2 last week and the plan is to start Cycle 3 next week. My side effects are dizziness, brain fog, no energy, chills, night sweats and wheezing and coughing. Each day brings side effects and its starting to wear me down - I never feel good or like I can do anything? Sound familiar to anyone?

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Profile picture for njhornung @normahorn

Still time to place your bets before a repeat CDC test tomorrow. I had 2 yesterday with the first showing a normal for me WBC but lowered lymphocytes. The second had both within the "Normal range". I was informed today that severe pneumonia is the reason for my hospitalizion.

Did the lab foul up?
Sample get corrupted?
Spontaneous Remission over matter of hours?????????
Other?

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Hi Norma! Been thinking about you and just wanted to check in this morning. I’m hoping that you’re recovering swiftly from the pneumonia! How are you feeling? Are you still in the hospital?

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi Norma! Been thinking about you and just wanted to check in this morning. I’m hoping that you’re recovering swiftly from the pneumonia! How are you feeling? Are you still in the hospital?

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@loribmt
In CCU but lymphocytes now normal.???????

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Profile picture for CaliforniaGal @califirniagal

@sveta25 yes & I am an avid tennis player so I use lots of good sunscreen & cover up. I wear spf 50+ long sleeve tops & full leggings. The ones with built in skirts are cute. See your dermotoligist twice a year.

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@califirniagal thank you.
🙏

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Profile picture for njhornung @normahorn

@loribmt
In CCU but lymphocytes now normal.???????

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@normahorn Hi Norma! Haven’t heard hide nor hair from you so I thought I’d better drop by to see how you’re doing. I sure hope you’re back home recovering now from the pneumonia. There’s only so much hospital food a person can take! Are you on the mend?

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