Anyone have success with treatment for vaginal Lichen Sclerosus?

@jw9
Has anyone with lichen sclerosis used clobetasol along with lidocaine for the pain?!

@andwho I haven't used lidocaine for LS. But I wanted to share with you that I literally had fissures by the time I got a diagnosis. Deep sores. I think it took 2 months with the clobetasol treatment for that to heal. Of course, I'm also using a barrier cream, and/or coconut oil. I learned a lot from the Lichen Sclerosus Support Network on youtube. These are women who have been through healing, some in remission. Plus, the best gynecologists that specialize in LS. The podcast's attitude towards sharing info is really great, upbeat. Helped me feel less alone.

@jw9
So the clobetasol helped heal the fissures? I’ve been using clobetesol since the end of November. Could it take that long to heal?

@andwho
I learned on the podcast I mentioned, Lichen Sclerosis Support Network (youtube), how to best apply the clobetasol. There are videos about anatomy and why we need to get the best absorption. And from what I've heard it might take months to clear up sores. I hope you look at these for some support because this is chronic and difficult to live with day to day. I feel much better, as I said. It really felt like a blow though, to hear that I would have it for life. Then I thought of all the other autoimmune illness I live with, realizing that it was also going to be lasting for life!

@andwho - Thanks for your quick response. I went to CVS earlier today and bought CVS brand lidocaine 4% cream. As soon as I got home I applied it before I urinated. It did not help at all. The burning sensation when the urine hits the outside tissue is enough to make me almost scream. Is your lidocaine a gel or cream? Also is it a Walgreen's brand? As far as what lichen planus is, you might do a google search but as I understand it is the same cause of lichen sclerosis. I know it is incurable but I pray for some treatment that will give some relief. It seems there are so many who find an answer but we all seem to be different. Look forward to your response. Faye

@fdixon63 try this cream I get from Amazon. Works really well. Calmoseptine Cream Skin Protectant

It has menthol in it that really helps

@ccmase1030 - Thanks so much for your recommendation. I read some reviews about this cream. I have a couple of concerns. 1- Menthol might cause irritation to my lichen planus as the skin is sooo sensitive already. 2- It is reported as "thick" and can be a little hard to apply. Any pulling on LP tissue causes much pain now and later. Look forward to further comments.

@fdixon63 yes it’s thick like a diaper rash cream.

@ccmase1030
I’ve tried the calmoseptine but the menthol burns if you have any sores! And that hurts!!