Cerebellar Stroke - experience/treatment/recovery

Thank you for your reply, Supra. Are your headaches constant, or only when head is against something? Mine are all day always, but become unbearable with pressure applied, as with pillow, wall. Don't mean to pin you down, just trying to understand my own head, lol. Is this headache typical for this type stroke?

Insula, when I came home, balance was gone, I still had terrible vertigo, still vomitted, and had to work very hard to get to the point where I could use the walker. But, I was 57, in good health, and progress was made quickly. Well, took a couple months, but progress was made every day. Once he gets better with walker, he will be inspired to keep working harder until he can walk without it. You are, as of now, at the most overwhelming point. That will pass to just a memory as he begins therapy and makes progress. God bless!

My headaches are constant but when i lean or lay on any surface hard ir soft it hurts more. My stroke occurred on my right cerebellum.

Hi how are you? My caverneus is in brain stem. I had a hemorrhage on 9/30/18

Right side here too. Left side affected. Little control over limbs, but still had strength. Kinda strange. But the headaches, they have done nothing but get worse. Do most people with this type stroke end up with these headaches? What do you use for painrelief? Aside from the injection treatment you are receiving, if you dont mind me asking?

How is your recovery going? Where you able to swallow right after your stroke? What helped with your dizziness and nausea ?
Thank you
My mom just had a stroke ... it is difficult to watch the struggle.
I am sorry that you had to go through having one.

I used ibuprofen up until last week when my neurologist put me on topamax.

I still sometimes feel like I am looking out at things going on rather than really experiencing them 1st hand. It is weird.

Bille, I still feel like that, too. It's been almost 3 years now. I may have to accept this is the new me. I can only describe it as a surreal world. Still experience joy, sadness, still have enthusiasm, but it all feels less intense, less real. Truly don't feel depressed in as far as a medical/psychological sense goes. Just feel oppressed, like there is a weighted veil between me and everyone else. Intellectually I know nothing has changed. My husband and children love me. The grandkids are still adorable, still make me laugh, still thrill me....but somehow it is all.....less. I am the only thing that has changed.

Do you feel this way? It's a bit disconcerting to me. I used to jump in with both feet. Now I dip a toe in and consider if I'm up to it....whatever it is. My brain wasn't damaged in a place that affects emotions, but my emotional make up is altered. I am very grateful to be here for my loved ones.My stroke was large, damage was great. My comeback was good. Deficits manageable, for the most part, but living with this surreal feeling is probably my greatest challenge and no amount of work on my part can correct this.

The headaches are impossible to control and hard to endure. They taint everything I do. Not exactly wreck all pleasure, but put a slight pall on everything. Hard to slog through. How do others handle these headaches?

I do feel like that. I wonder if it because the way the brain is recording the activities. For me, there are times when I can't find a word or remember if we did something. Usually it is not that I can't remember, I just can't remember where my brain stored it. I do think I am depressed. It is funny, I told my GP that I was depressed before I knew I had experienced a stroke.

I am going to Johns Hopkins in a couple of weeks for Neuro-psych testing. I am really hoping that I will be able to get some idea of what in my brain is not working as it should and what, if anything I can do to improve it, or just as you said, accept that this is the new me.

I talk to my husband, and he can't be more supportive. He has been wonderful in all of this. But I think that everyone looks at the physical side and do not see the typical indications of a stroke so they have difficulties in understanding that I see things every day, that just don't work they way they used to. I feel like my brain aged a decade overnight.