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Pulmonary hypertension

Lung Health | Last Active: May 20, 2018 | Replies (71)

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@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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Replies to "@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking..."

<br><br><br><br><br>Yes, it was directed at you. How are you doing with it?<br> <br><br>

@ronbee, I have discovered that different facilities state some things differently. I think that my number for that may be 41, but I am not sure. That number is listed as RVSP, right ventricular systolic pressure. Mine is just about within range for my age.
JK

@windwalker Hi Windwalker, thanks for asking. I really am doing great. No one can believe the difference in me in such a short amount of time or how quickly I was back to the old normal me. I just have a bit more fatigue but that may be because the immunosuppressants cause "night sweats" (mine happen during the day too) which wake me at night, plus some incontinence which also makes me get up at night a lot. I was thinking this morning as I lay in bed prior to gettint up, the whole journey seems surreal.
JK

<br><br><br><br><br>So glad that you got a new lease on life. Guess the fatigue and sweats are <br>a small price to pay when you look at the big picture. I have daily fatigue from <br>MAC and multiple lung diseases and sweats from menopause; so I def can <br>sympathize with those annoyances. I get it about feeling 'surreal'. I felt <br>that way just going through the pre-qaul tests for a double lung transplant. I <br>hope it never comes to that.......was put on the deferred list for now.<br> <br><br>

@windwalker Thanks, I agree, it is a small price to pay. I am pretty darned happy almost all of the time except when I get awakened multiple times a night and have to throw the covers off. Even though I tell myself to consider the alternatives.
JK

<br><br><br><br><br>Yep, that is how my nights are too.<br> <br><br>