Has anyone had a low platelet count of just 1?

There are so many different things that could be considered. What’s important is that you’re under the care of an excellent hematologist with connections to a team of other doctors if needed. And yes, my platelets went down to one, I had petechiae and blood blisters.

I had a low count of all 3 in the very low under 10s. What i thought was fatigue was what the doctor said need immediate transfusion that evening. I was hospitalized 4 days. It had a cause. 12 rounds of chemo in 12 weeks, then 1 dose of Red Devil. Emergency rooms and critical care units have seen those low numbers. Your marrow is not producing.

I had a zero one time. I knew something was off, called the clinic weekend number and got in. They took a quick lab and then went into quiet but urgent action. Happily I had no bleeds etc!!!! It was during a Chemo cycle.

Yes, I had mine dip to exactly 1 between chemotherapy consolidation treatments. Transfusions and time have brought it back to normal.

my WBC is a 2. I was just diagnosed with AML . waiting on 2 more test results. May need a bone marrow transplant. can you start meds right away. and can chemo help.?
I saw my primary Dr in June for a bug bite, She did blood work. my numbers are good. but CBC low RBC enlarged. this all so difficult to understand. where do start? Tennessee oncology. is where I'm going. my Dr. seems very smart. wife mother and gonna

Hi @debrasue, welcome to Mayo Connect. Being newly diagnosed with AML I know you have a ton of questions. I’m here with answers for you, along with many of us who have had AML and some have gone on to have a bone marrow transplant. That was my story from 6 years ago. I’m healthy, no sign of disease and living my best 2nd life after my treatment for AML and bone marrow transplant.

With the other tests you’re having done I’m assuming the doctors will be checking for genetic mutations which may be the underlying cause for the AML. Those test results will determine the type of treatment that will be required.

To answer your question about chemo/treatments. Yes, meds would be started right away in order to get the proliferating leukemic cells under control. Chemo does help.
However, with some specific mutations chemo and a bone marrow transplant may be suggested. But first your hematologist/oncologist will be waiting on the results from your tests. Was there also a bone marrow biopsy done?

Had low platlet count, bone marrow as not producing due to liver stone blockage.
It caused low iron which lead to low platelet count.

There is natural stuff on the market to get your counts up. Blood support sold on Amazon.

Dont go thru a bone marrow test because it's not needed and just painful and costly, there is a cause and meds will be given anyway if its bone marrow not producing on it's own. Meds will tell in time if you need to continue with them or if the bone marrow will restart it's self and keep producing as normal.

Good luck everyone and remember be in charge of your health. I had ER doctors tell me I was dying and had several issues all before a single test was done. None of it was true.

The more I questioned the more they changed their united chant of what was wrong with me. The more I was right about my own health the less they spoke.

You know your body best, always stay in charge. Especially since you deal with doctors who don't even know you these days. Best of luck and good health to all. The less doctoring the healthier you stay.

@jacks90 It’s great that you were able to find the answer to correct your low platelet level. It sounds as though this took a bit of sleuthing to figure out but left a ‘bitter taste’ from your experience with doctors.

I agree wholehearted with you that we know our bodies best and that we need to advocate for our own medical care. But we do have to be cautious when making statements regarding someone else’s care such as telling people not to have a bone marrow biopsy. They can be incredibly valuable sources of information for doctors. Our Connect community guidelines allow us to share our experiences but to refrain from giving medical advice or telling people what to do.

By the way, Welcome to Mayo Connect. Since you’re new, if you haven’t seen them yet, I wanted to share our Connect community guidelines which help to keep the forum a safe but informational site for everyone.
https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/
What tests did you receive to diagnose the liver blockage? Where you given any prescription medications to help with that?

When my son was diagnosed with Leukemia, his platelets count was 7. He received blood transfusions and eventually had a bone marrow transplant.

Not bitter at all just honest about my experience and perspective.

I hope my experience helps someone.

God Bless you all.