What helped your seizures: Treatment Center? Neurologist? Home care?

Posted by 27angel @27angel, Dec 2, 2025

Has anyone improve there seizure symptoms via treatment center, neurologist, or home caregiver. Of the following which one was more effective.

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Now that i had that horome imbalance I had to make sure its under control. Finally I return back to epiletologist and neurololgist see I studied Medical terminolgy these words should be remembered. So now after the 25th I return for testing, etc. Communication socially has been helpful. 24hr is also helpful. Wlaking is helpful. Talking is helpful. Hygiene really comforts me. massages seem to be great. I will be back with a new plan of care due to memory, stability, congnitive, and keyboarding, agression really agressive. This is the testing I notice very frustrating.

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Profile picture for 27angel @27angel

Now that i had that horome imbalance I had to make sure its under control. Finally I return back to epiletologist and neurololgist see I studied Medical terminolgy these words should be remembered. So now after the 25th I return for testing, etc. Communication socially has been helpful. 24hr is also helpful. Wlaking is helpful. Talking is helpful. Hygiene really comforts me. massages seem to be great. I will be back with a new plan of care due to memory, stability, congnitive, and keyboarding, agression really agressive. This is the testing I notice very frustrating.

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Hi @27angel
What wonderful news to start the new year! I'm so happy to hear this.
Have you already scheduled an appointment with a neurologist or epileptologist?
Crossing my fingers for you!
Chris

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Profile picture for Lisa Lucier, Moderator @lisalucier

@maxsmom - I believe some of your message to @27angel did not come through. Would you mind reposting it?

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@lisalucier
just did a repost to her and her son. added that things can get better and possibly a better message. thank you for letting me know. have a blessed day today.

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Profile picture for methel @methel

@27angel

If I were in Ohio I would try to get to the Cleveland clinic. They treat many very complex neurological disorders. So far as what worked for me. The person who drew my blood once at a standard QUEST place, volunteered that she also had epilepsy and the AED that worked for her. I brought her suggestion back to my neurologist and he prescribed it and it has worked for almost 8 years now. Best wishes

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@methel I stopped meds in 2012 as I had no luck with drugs I tried over about 8yrs. What are the drugs you are on & what type of seizures do you have. Glad they have worked for you. Take Care

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I’m sorry that you haven’t been able to get relief from your seizures. It’s a very difficult situation to deal with. My seizures have been focal which occasionally would generalize.

For me it maybe was slightly easier for the neurologist to know what drugs to try. I had surgery for a meningioma that caused a stroke. The combination of tumor, stroke and surgery left me with a “scar on the brain” according to him. He tried Keppra and kept increasing the dose. I kept having seizures, but milder and milder as the dose increased. Finally the phlebotomist who drew my blood for the Keppra titer volunteered that she had epilepsy and regular Keppra did not control her seizures, but extended release Keppra did. I asked my neurologist about Keppra XR and he agreed to try it and it worked. Best wishes as you go forward.

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