Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for gloaming @gloaming

@anjimlynch Flecainide is a very popular, and usually well-tolerated, anti-arrhythmic drug. Some people, when their episodes come and go, now and then, use what is called a PIP approach to Flecainide, or 'pill-in-pocket.' You keep a single tablet in your purse or wallet and only pop it down if you happen to have a run of SVT that lasts over 5 minutes. Many self-correct in just a few minutes, but if it persists, you get the tablet and wash it down. Takes about 40 minutes typically if your stomach has a recent meal in there. Many cardiologists suggest the PIP approach to their patients whose arrhythmia is transient.

Your cardiologist should, depending on how up-to-speed he/she is, offer to refer you to an electrophysiologist, or an EP for short. They are cardiac electricians, specialists, whose job is to assess your heart electrically and to then suggest a remedy for you, most often either drugs, a catheter ablation (more in just a minute), or a pacemaker. A lot depends on how symptomatic you are since occasional SVT and atrial fibrillation are not problematic. Only if the total 'burden' approaches 3% of all heartbeats in a 24 hour period. So, how you feel, and how you communicate its effects on you, will be as important to the EP and cardiologist as the disorder presents heart deterioration typically. Symptoms matter, especially if they make you miserable, and especially if they happen a lot.

Catheter ablation is day surgery where the EP enters your heart chambers with a thin hollow wire and causes scar tissue around places on the chamber walls where rogue electrical signals are causing chaos. This sounds drastic and terrible, but it's really very straightforward. The scar tissue creates a dam around those 'foci' by preventing the signals from spreading. It is the spreading electrical impulses that cause the atria to beat, but they're also still beating to the normal signal coming from the SA node, the 'sino-atrial' node with is the pacemaker for the heart. You can watch videos on YouTube about catheter ablation. I have had two. You're home that evening, and if it's done well, you can expect a normally beating heart for years afterward.

Jump to this post

@gloaming I echo your advice. Ablation is the first line treatment for afib/flutter. With new pulsed field technique it’s safer than ever. Better than meds with all their side effects plus meds lose effectiveness with time. Ablation is not a cure all as I’m having. Infrequent arrhythmias now 8 yrs after my 2017 ablation but it appears to be the best approach to reducing or eliminating symptoms.

REPLY
Profile picture for chickenfarmer @chickenfarmer

@gloaming I echo your advice. Ablation is the first line treatment for afib/flutter. With new pulsed field technique it’s safer than ever. Better than meds with all their side effects plus meds lose effectiveness with time. Ablation is not a cure all as I’m having. Infrequent arrhythmias now 8 yrs after my 2017 ablation but it appears to be the best approach to reducing or eliminating symptoms.

Jump to this post

@chickenfarmer If it worked for a few years, would it be worth it to go back and see if a second ablation can buy you another five-eight years free of arrhythmia? I have thought about this....some....but not much or long. For me, the symptoms when my heart is fibrillating are just awful. Anxiety, need to get up and pace (which has a silver lining since I sit too much and have widened my girth some), the thumping and fluttering in my chest, the need to belch out loud which, when watching TV with the missus, goes a long way toward maintaining our relationship....you get the picture. No, I will go for a third ablation when my time comes, and I'm under no illusions that I'm good for life now...most ablations lose out in time and the recourse is yet another ablation or just live with AF...which virtually never kills their hosts. Fortunately, when he discharged me on that final phone call about three months post ablation and with the Holter results showing normal sinus rhythm, no blips, he invited me to call his office as soon as I need help again for my heart. I will take him up on that.

REPLY
Profile picture for gloaming @gloaming

@chickenfarmer If it worked for a few years, would it be worth it to go back and see if a second ablation can buy you another five-eight years free of arrhythmia? I have thought about this....some....but not much or long. For me, the symptoms when my heart is fibrillating are just awful. Anxiety, need to get up and pace (which has a silver lining since I sit too much and have widened my girth some), the thumping and fluttering in my chest, the need to belch out loud which, when watching TV with the missus, goes a long way toward maintaining our relationship....you get the picture. No, I will go for a third ablation when my time comes, and I'm under no illusions that I'm good for life now...most ablations lose out in time and the recourse is yet another ablation or just live with AF...which virtually never kills their hosts. Fortunately, when he discharged me on that final phone call about three months post ablation and with the Holter results showing normal sinus rhythm, no blips, he invited me to call his office as soon as I need help again for my heart. I will take him up on that.

Jump to this post

@gloaming I feel your pain. My EP has offered a 2d ablation and I may go for that but for now the thyroid possibilities are more intriguing. My first ablation wasn’t that great. I had post ablation issues with pericarditis and blanking period was tough. Also I have read studies which indicate that on average ablations work for about 5 yrs. Still ablation is the best treatment over meds which have side effects and degrade effectiveness with time.

REPLY
Profile picture for gloaming @gloaming

@chickenfarmer If it worked for a few years, would it be worth it to go back and see if a second ablation can buy you another five-eight years free of arrhythmia? I have thought about this....some....but not much or long. For me, the symptoms when my heart is fibrillating are just awful. Anxiety, need to get up and pace (which has a silver lining since I sit too much and have widened my girth some), the thumping and fluttering in my chest, the need to belch out loud which, when watching TV with the missus, goes a long way toward maintaining our relationship....you get the picture. No, I will go for a third ablation when my time comes, and I'm under no illusions that I'm good for life now...most ablations lose out in time and the recourse is yet another ablation or just live with AF...which virtually never kills their hosts. Fortunately, when he discharged me on that final phone call about three months post ablation and with the Holter results showing normal sinus rhythm, no blips, he invited me to call his office as soon as I need help again for my heart. I will take him up on that.

Jump to this post

@gloaming Once again your response was much more astute and helpful than what I wrote back.

REPLY

I am a 77 year old woman who began having pvcs in my 40s. In 2023, they increased by a lot but got them under control after 4 months by taking magneseum supplements even though not low on magneseum. Unfortunately, I was diagnosed with hpylori infection 4 months ago and most drugs and heavy doses of antibiotics cause heart arrythmia or make it worse. Do you know anyone in my situation and my age who has or had this situation. I haven’t started therapy because I am afraid of cardiac arrest I didn’t even get flu shot due to increased risk of ITP. I cannot find a hpylori support group!

REPLY

Wolf Parkinson White Syndrome runs in my family, riding on the 7th chromosome. Many years ago I realized I was having periods of arrhythmia while running a 10K race in Alaska. The cardio was able to identify it by my wearing a monitor, but he said I would have to have treatment in the lower 48. Two heart mappings lasting 8 hours showed I have five kinds of arrhythmia, and Afib was recently added. I have had eight cardiac ablations and currently have my third implant (three-in-one). Grandkids call it "Wall-ee." I have a fantastic aggressive electrophysiologist and cardio to track the CHF, which is under control. Recently I have been studying the effects of blood sugar and sleep on the episodes. No caffein or alcohol. Of course, I take my daily meds. Yes, meditation and yoga seem to help. I am still able to travel and cruise extensively, but lately higher altitudes bother me more than in the past. Never give up! Never give in!

REPLY
Profile picture for hpeggy482 @hpeggy482

I am a 77 year old woman who began having pvcs in my 40s. In 2023, they increased by a lot but got them under control after 4 months by taking magneseum supplements even though not low on magneseum. Unfortunately, I was diagnosed with hpylori infection 4 months ago and most drugs and heavy doses of antibiotics cause heart arrythmia or make it worse. Do you know anyone in my situation and my age who has or had this situation. I haven’t started therapy because I am afraid of cardiac arrest I didn’t even get flu shot due to increased risk of ITP. I cannot find a hpylori support group!

Jump to this post

@hpeggy482 I too suffered from excess amounts of PVCs/PACs together with infrequent bouts of AFIB/Flutter. LAst year I dicovered that reducing my daily thyroid hormone amount eliminated this problem.

REPLY

My husband experienced afib when had double pneumonia. Still has it... jumps around in 80's and 90's in resting state. . . Dr recommended the ACH cadioversion which is shocking the heart back into reg rhythm.
Curious if should do it?

REPLY
Profile picture for cunnee @cunnee

My husband experienced afib when had double pneumonia. Still has it... jumps around in 80's and 90's in resting state. . . Dr recommended the ACH cadioversion which is shocking the heart back into reg rhythm.
Curious if should do it?

Jump to this post

@cunnee Before my ablation i was in ER after two separate Aflutter/AFIB attacks. First time medical folks were able to convert with drug; 2nd time drug didn't work so i got the high Joule electro shock treatment. Both experiences wenyt as expected and eliminated my AF. I subsequently went on to receive an ablation. REcommend that path for you.

REPLY

Is there anyone who had to resort to a pacemaker after 3 ablations over three years stopped fixing the arrhythmia?

REPLY
Please sign in or register to post a reply.