My husband has been taking Donezipil for several years now with no untoward effects. I have no way of know what he would be like without it and I don't want to take him off of it to find out. If it improves any of his cognitive abilities even a tiny bit to me it is worth it.
My life partner took lowest dose of donezepil for more than a year and definitely declined when it was necessary to change to another med. I think everyone reacts differently to meds. I hope our story is helpful to others.
In rare instances aricept/donezepil adversely affects heart function. My partner was born with a heart murmur and had bovine aortic valve replacement surgery about 10 years ago. A small stroke, “infarct”, during heart surgery is now described as “chronic infarct of the deep right frontal white matter with generalized parenchymal volume loss”. That was the beginning of our slow painful journey.
Donezepil was abruptly discontinued by doctors when partner developed very slow heart beat. A pacemaker was implanted for heart beat issue. Abruptly stopping donezepil was terrible for us. We went through several meds that did not help before landing on memantine. We have since added seroquel, due to anxiety and aggressive behavior.
He was doing much better before stopping donezepil. We will never really know whether further decline is just the continuing course of the disease or related to stopping donezepil. We all just do the best we can with the cards we are dealt.🥲😢
My life partner took lowest dose of donezepil for more than a year and definitely declined when it was necessary to change to another med. I think everyone reacts differently to meds. I hope our story is helpful to others.
In rare instances aricept/donezepil adversely affects heart function. My partner was born with a heart murmur and had bovine aortic valve replacement surgery about 10 years ago. A small stroke, “infarct”, during heart surgery is now described as “chronic infarct of the deep right frontal white matter with generalized parenchymal volume loss”. That was the beginning of our slow painful journey.
Donezepil was abruptly discontinued by doctors when partner developed very slow heart beat. A pacemaker was implanted for heart beat issue. Abruptly stopping donezepil was terrible for us. We went through several meds that did not help before landing on memantine. We have since added seroquel, due to anxiety and aggressive behavior.
He was doing much better before stopping donezepil. We will never really know whether further decline is just the continuing course of the disease or related to stopping donezepil. We all just do the best we can with the cards we are dealt.🥲😢
My husband was taking it for three years and he decided he wanted to stop it because he was losing weight and thought it might’ve been a side effect anyway he didn’t take it for two months. He started hallucinating. He started not recognizing me asking me if I was his wife, I had to put him back on it and now he’s a lot better he knows me, but of course he still gets confused but nothing like when he was off of it
My husband was taking it for three years and he decided he wanted to stop it because he was losing weight and thought it might’ve been a side effect anyway he didn’t take it for two months. He started hallucinating. He started not recognizing me asking me if I was his wife, I had to put him back on it and now he’s a lot better he knows me, but of course he still gets confused but nothing like when he was off of it
My husband had a bad reaction to Donepezil, I was driving us in his truck and thought we were in my car, he didn't know where he was. The doctor took him off the medication.
Hello:
One thing I found out yesterday on a Q and A webinar with an Alzheimers and Dementia doctor, is that Donepezil and Memantine may not be the right med for my spouse who has Frontotemporal dementia, behavioral variant. His own PCP did not say anything about this when he prescribed both meds, probably didn't know.
It's tough when your own doctors aren't up to speed with the latest research and knowledge.
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My husband has been taking Donezipil for several years now with no untoward effects. I have no way of know what he would be like without it and I don't want to take him off of it to find out. If it improves any of his cognitive abilities even a tiny bit to me it is worth it.
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4 ReactionsMy life partner took lowest dose of donezepil for more than a year and definitely declined when it was necessary to change to another med. I think everyone reacts differently to meds. I hope our story is helpful to others.
In rare instances aricept/donezepil adversely affects heart function. My partner was born with a heart murmur and had bovine aortic valve replacement surgery about 10 years ago. A small stroke, “infarct”, during heart surgery is now described as “chronic infarct of the deep right frontal white matter with generalized parenchymal volume loss”. That was the beginning of our slow painful journey.
Donezepil was abruptly discontinued by doctors when partner developed very slow heart beat. A pacemaker was implanted for heart beat issue. Abruptly stopping donezepil was terrible for us. We went through several meds that did not help before landing on memantine. We have since added seroquel, due to anxiety and aggressive behavior.
He was doing much better before stopping donezepil. We will never really know whether further decline is just the continuing course of the disease or related to stopping donezepil. We all just do the best we can with the cards we are dealt.🥲😢
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5 Reactions@katme
Thanks for your reply. Sounds like a difficult experience. I hope the best for you and your partner. Hopefully the Donezepil will help my partner.
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2 ReactionsMy husband was taking it for three years and he decided he wanted to stop it because he was losing weight and thought it might’ve been a side effect anyway he didn’t take it for two months. He started hallucinating. He started not recognizing me asking me if I was his wife, I had to put him back on it and now he’s a lot better he knows me, but of course he still gets confused but nothing like when he was off of it
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2 Reactions@jsaved74
Thank you. So far so good with us. Hope things go as well as possible for you.
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1 ReactionMy husband had a bad reaction to Donepezil, I was driving us in his truck and thought we were in my car, he didn't know where he was. The doctor took him off the medication.
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2 ReactionsThanks for the info. Hope things are better.
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1 ReactionHello:
One thing I found out yesterday on a Q and A webinar with an Alzheimers and Dementia doctor, is that Donepezil and Memantine may not be the right med for my spouse who has Frontotemporal dementia, behavioral variant. His own PCP did not say anything about this when he prescribed both meds, probably didn't know.
It's tough when your own doctors aren't up to speed with the latest research and knowledge.
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Like -
Helpful -
Hug
3 Reactions