What if others say they're afraid you'll have a seizure?

welcome to the group, telling someone you haven't seen in years can have many outcomes , my friends would ask if thy needed to do anything if while with me and i would let them know just as i would let a family or close friend know. right up front. that's how my friends know me and wouldn't want less. if you are really worried about it have it out as soon as able to stave off future issues or more. course that is my opinion, i just don't like others being shocked unnecessarily if i can help it. a good friend would take it however you put it to them.

@randallshields56 would add to that if my friend was concerned, id walk them through a couple scenario's. let them know you know how and what to do. who knows maybe say i have a health issue and don't want to scare you off if it rears its ugly head, i know how to handle this. I'm actually going thru something like this now, i told my friend the doctors are not worried and said they are working hard to get me on the right meds to keep my seizure's at bay. it helped calm her down enough we could visit more.

Thanks for the discussion. It helps me think of possible scripts I could use in the future. Biggest challenge I face now is family members in the house who live on pins and needles thinking I’ll have a seizure any minute. This, despite assurances and much improved stabilization after starting meds six weeks ago.

@marianne72
biggest issue i had was different types of seizures. my first ones and i did not know what they were, are called ground seizures. learned that just yesterday. since then i have had numerous types. Focal ones are for me the hardest. usually takes me three days of resting in bed to get back to normal. Thank you for your posting. and the like.

another thing i have learned from the seizures both myself and daughter get is we both have different triggers. hers are usually because of too much going on in the brain and getting overheated. hers didn't start till she had her two kids. mine was from a tumor and too many head traumas .with bringing family on board was tough, but every obstacle i improved on regardless if i considered it a win or not. it was to them. i knew i was being watched 24/7 but they learned with me that i would let them know the minuet i was not feeling right. mad a big difference after a while, only one condition, had to have my phone with me always. what set mine off was too much input to the brain at a time. made me think to hard, i taught them patience and it paid off for all of us. now i think of what i want to say before i say it, makes good practice for speaking to anyone.

would like to make a statement kind of off subject. my caregiver has increased her hours so i have her full days, makes it hard to react to notices that catch my eyes and medications, evening ones make me sleepy and not as fresh you might say, so going to try to catch a few in the morning a a few at night along with as many as i can on the weekends. Not sure of my near future yes with the hospital finding the cyst in my brain or what we have to do to fight it , but fight i will just be patient with me and i will respond as soon as able. thank you all so much for the likes and hugs an helpful. it means a lot .

@marianne72 last comment tonight. your healing and improving. its taken me more than a year to get this far but im thankful for the journey and if anyone of your family has a question ill gladly respond to an email or chat here in the group. the mind has a remarkable way of healing. mot just brainwaves but the body. just have to believe and fight for what you want. Thank you so much 💓

@randallshields56 It is very hard when seizures are started off by TBI's, tumours etc. It is hard to know what sets them off. There is a list a mile long of triggers. I know what you mean about too much in your head, or stress.

@marianne72

I have been really lucky, I guess, because my kids who are local have seen me with a seizure and treat them as “ this is just what mom does”. ( It makes you wonder what other things I do they think are odd. ) I once electrified my church group with a generalized seizure, but the retired RN recognized it and knew how to handle it.
The epilepsy foundation has a video on their website showing you what to do for someone with a seizure. If you know someone who says they are worried about this, tell them to look for that video.

@methel thank you for your post, yes i have watched a few videos and my daughter checks often for new information because or her health issues and possibly one day a grand seizure. they can be scary and her wife has studied long hours to help us both in times of need. spreading the word helps so that others can help when out and about. just like so many things that can go wrong, there is classes or multiple web sites you can visit and getting better every year. best we can do is to give who are worried, places on the web to check or videos or numbers to call. try to put their minds at ease. hope this helped.