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Pain in leg muscles, tendons, and knees after Bilateral PE on Eliquis

Posted by smasneri @smasneri, Jul 6, 2023

One month after massive bilateral PE and taking 5 mg twice daily. Experiencing constant and continual pain in legs, mainly behind both knees, in tendons, and some muscle flare ups. Have had two ultrasounds and a CT scan on both legs since I was diagnosed June 6 and they are negative. My D Diemer is .43 and all vitals strong and regular. Echocardiogram shows no strain on heart. We have ruled most everything else out. No trauma to legs, no cuts, bruises or strains. Is this related to the Eliquis? My local hematologist wants me on it for another 5 months, I won’t be able to make that unless this subsides. Anyone else out there having this issue? Recommendations?

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ruth36 | @ruth36 | Jan 13 8:52am
In reply to @rebeccadixon "@michaelalexander I experienced repeated nausea, fever, weight loss, shakes and hideous joint pain! I went to..." + (show)
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@michaelalexander
I experienced repeated nausea, fever, weight loss, shakes and hideous joint pain! I went to 2 Urgent cares & 2 ERs when I hardly could get out of bed. They would throw more pills at me. I finally took myself off of Eliquest after losing 13 lbs. in one month! I have returned to near normal except for swelling in my right knee that I didnt have previously! My CRP was at 85, while less than 5 is normal so I wonder if its done permanently damage to my knee! You know what you feel like, while doctors are trained to add more drugs rather than go after root causes!

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@rebeccadixon
So true when you said we know how our body feels yet when you try to tell the doctor that they always seem to have a generic answer.” it’s not the medication that’s causing that they don’t have side effects like that” yet you go on this site and you see so many people that have issues with legs, stiffness pain After being on Eliquis. I thought I was going to be able to get off it after a year of taking it, but now I was told to continue on it, which isn’t cheap.

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gabriig | @gabriig | Jan 17 11:59am
In reply to @ruth36 "@rebeccadixon So true when you said we know how our body feels yet when you try..." + (show)
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@rebeccadixon
So true when you said we know how our body feels yet when you try to tell the doctor that they always seem to have a generic answer.” it’s not the medication that’s causing that they don’t have side effects like that” yet you go on this site and you see so many people that have issues with legs, stiffness pain After being on Eliquis. I thought I was going to be able to get off it after a year of taking it, but now I was told to continue on it, which isn’t cheap.

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@ruth36 At this point I am not on any blood thinner, as it was thought my clots were caused by something no longer present. However when I saw my doctor two weeks ago I listed the side effects which I had (some still have) and suggested he check out this site. Moreover I said that if I had to go on a blood thinner again I'd hope it would be one unrelated to Eliquis, even warfarin with all its required tests and avoidance would be better. All along this path of getting better, my mind kept going back to my last day in the hospital, and how wonderful I felt. The day after that I started taking Eliquis. My guess is its the best for removing clots, an it did for those that reminaded. The original massive clot was remove surgically. All. in all, he is an excellent physician and I am alive!

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