Hopeful
I am putting this here as well as the Long COVID site, as it is clear to me and so many others that Long COVID is an autoimmune disease.
https://www.autoimmuneregistry.org/newsletters/could-a-new-therapy-replace-hours-long-ivig-infusions/
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
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Hadnt heard thus. Has anyone found a way to deal w it is it is an autoimmune disease! Tell us more, please! Do you know where you heard it? I have two friends who wd like to know also. Tx! Take care!
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1 ReactionI’m still not sure exactly what “Long Covid “ is.
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1 Reactionhttps://www.cdc.gov/long-covid/signs-symptoms/index.html
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3 Reactions@jimiwho I apologize. I just saw this post. In my experience and a lot of what I have read on some of these groups, Long COVID seems to mimic other autoimmune disease symptoms. I have gone through GI issues, interstitial cystitis, RA symptoms, chronic fatigue, post-exertion malaise and other weird symptoms. I have had several skin rashes that the dermatologist can't explain. When I first got sick, I was tested for EVERYTHING. The RA IGg came back positive and yet now, it is not there. Rashes are sometimes a sign of Sjorgen's, Gi issues can be related to symptoms of Crone's disease and also my ANA titer was present which is a sign of an autoimmune issue. That was all about 3 1/2 years ago. Epstein Barr Virus was reactivated in me as well. So, all this to say, I do not have ANY of these autoimmune disease, however I have had many of the symptoms and I am not alone. If you read others comments, they have also experienced many symptoms, some similar and some different. I believe that the Covid virus attaches itself to cells in our bodies, tricks them and our bodies and immune system ends up fighting itself. I am not a doctor, but I have done a lot of reading on this due to not one doctor having ANY answers when I first got sick. There is research going on, and I have hope. In the 80's and 90's HIV was a death sentence. Now, it is treatable. This is my hope.