Connect
Discussion
Comment receiving replies
Replies to "Hello @mareemullins and welcome to Mayo Clinic Connect. You've come to a great place to share..."
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 11 10:58am | Replies (29)
Comment receiving replies
Hello @mareemullins and welcome to Mayo Clinic Connect. You've come to a great place to share your story with others walking the same path.
It is wonderful to hear you are feeling so good...especially after such a frightening experience.
Have you had a chance to read all the Camzyos stories? The Camzyos group is full of people who share their ups and downs while taking this drug for HOCM. Not everyone has a happy ending with Camzyos, but it sounds like you have started off with great results.
Aside from the HOCM, are you healthy and active?
Is your cardiologist educated well in HOCM?
Replies to "Hello @mareemullins and welcome to Mayo Clinic Connect. You've come to a great place to share..."
Connect
@karukgirl Hi Debra I am healthy and well definitely feeling like walking more now which is understandable I will ask my new cardiologist about how much excercise I should be doing. Unfortunately the cardiologist I saw 12 months ago in Brisbane Australia miss diagnosed me and sent me on my way the new cardiologist was very surprised that she didn’t send me to hospital then. I guess not all cardiologist are fully aware of the signs to look out for which is a worry, I will ask my new cardiologist how we let her know what’s happened and what she missed when I see him in March so she doesn’t miss diagnose other patients. The care