Allodynia: Anyone else sensitive to touch?

I've been prescribed Lyrica, which I've been taking for my Allodynia. I can't say that it has helped. So, I would pass. Jim

I would loves to hear more about this
I also have allodynia. Unclear reason
But it's pretty unbearable, especially if it gets too warm

If I am touched waist or lower, I feel vibrations down my legs...extremely uncomfortable. I have Peripheral Neueropathy...mostly numbness no pain in my legs. This disease is so variable from person to person with of course little to no treatment that does anything. I take 400Mg Gaba at night and honestly not sure why. At night, cramping and foot /leg spasms are my biggest issue. I do take Mag glycinate nightly as well for this. I am most uncomfortable when it is cold.

I also have allodynia. It is the most challenging part of neuropathy for me.
Fabrics that should not hurt my skin feel like sandpaper which aggravates the burning neuropathy.

@rwinney I have hyperalgesia now from tramadol withdrawal despite my 11 months of tapering. I was prescribed Tramadol and lyrica for 12 years --400mg tramadol.
while I expected pain like this nor the the insomnia up 24-40 hours at---hyper allergenic and other responses are surprisingly intense. My doctors helped me cut out pain , but little advice for now. I am doing the supplements and foods that are recommend but worry about my strategy going forward--all my doctors recommend Marijuana, but I have only used micro-dosing for the worst

Hello @dckuke, give yourself credit. It sounds like you're doing a fantastic job at reducing medication intake. Sorry to hear there's been some unwanted side effects but I'm wondering, have you considered a pain rehabilitation program like Mayo Clinic PRC?

Despite checking in, I did know of their program. I have polyneuropathy, plantar fasciitis and arthritis in every joint—almost zero feeling many areas of feet and ankles—which are deteriorating quickly. I know I will have a pain problem. Biggest issues are when Lyrica hit half life—then 2.5+mg micro dose thc. So, I know absolutely that I will need help with pain and maybe insomnia. What program do they have? Thanks for your interest

DID NOT KNOW ABOUT…

@bealillie I have thermal and tactile allodynia, it’s quite awful especially in bed.

@dckuke Mayo Clinic has 3 pain rehabilitation centers which focus on placing more control on the person versus doctors and the medical universe. It's about learning tools for management which is all encompassing - behavioral, physical, emotional and chemical. For instance, I dealt with allodynia which for me was heightened from central sensitization syndrome and some medications. In rehab, I learned to calm down my central nervous system and start removing fuel lines from the fire. It's about a lifestyle change, and learning and applying tools for future management.

Here's info about the PRC:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
The program is not for everyone, but it doesn't hurt to dive in to learning about its teachings. Some folks who did not go we're still able to take away new thoughts and ideas about pain management. It is a comprehensive, multifaceted approach.

Outside of medication, what tools do you use presently to help manage symptoms?