As recommended by 4 different my doctors I use micro dose THC infrequently during the days gaps and in the pm—almost so low that they are energizing rather than sedating—no high. It is helpful for pain—not for the insomnia
@indiana9 Hello , I’m very sorry to hear about your experience with allodynia. I was diagnosed with RSD or Reflex Sympathetic Disorder 24 years ago after a catastrophic accident. My ankle bone was broken and the Perineal nerve torn with loss of feeling down my lower leg from the knee to ankle . The next day my foot hit the wall as I was getting onto the toilet in a small space with walker and cast
The next day the symptoms of RDD or now called Chronic Regional Pain Syndrome type 2 ( nerve damage) . It was so severe that the pain of different types drove me to near suicidal. It was sheer chance that my Mom heard a lady on the radio talking about how touching a sheet in bed was like touching an iron causing extreme pain. Her foot would be cold as if frozen for an hr and a half then be blue as if no oxygen. After this the blood would start to move down and swell my leg and foot so badly I couldn’t wear any type of shoe or sandal because of severe reaction to touch . Then my leg would get red , so hot and burning. It felt like hot oils were being poured down my leg continuously. This is what I had . it is the sympathetic nerve system that goes out of wack . Like the thermometers in your house the sympathetic system is an automatic nerve system down to your spine that can be triggered by any accident or even a bruising of a limb can start the syndrome. Touching was so painful. I could not ride in a car because the bumps caused so much pain . Any type of touch would start it off
The water in the tub would be cool to touch on my good leg and feel like boiling water on the affected leg . Allodynia is abnormal sensitive to touch . I slept with my legs protected by a sheet holder from a health store that kept the sheeting from touching me . I couldn’t stand any touching as it felt 100 times the normal sensation
After years on narcotics, fentanyl, morphine, my pain specialist start my burning pain that goes down the leg the drug I use through years of trails i don’t know which drug worked in my Allodynia because I was on Venlafaxine for the burning pain, and the Allodynia was reduced over time by use of self desensitizing my leg . This is done over a long time. You can’t rush it . It’s Graduually caressing your skin with something extremely soft and only for a very short time. I had to research online clothes that were extremely soft and sweat resistant and airy . I couldn’t put a sock on for over a year . It’s a very slow recovery for me bu it is pretty much gone . The burning pain is always there but controlled with Suboxone. It’s the only drug that has helped all my symptoms of RSD
I was lucky but just don’t look ahead to where you want to be . You wake up and are a certain way with pain etc but do the exercises and desensitization a very little every day and then one day you will look at your leg and say omg it’s gone or tolerable
I tried everything in medicine. You need to take it one meds at a time for 6 weeks to see if helped If causing discomfort and bad effects then stop and try another or go to a different Pain Clinic These are the only ones to help A psychiatrist who is knowledgeable in drug treatment and effective on pain management. I never found the use of cognitive behaviour therapy to lessen the pain It does help to learn how to focus and block pain but you can’t be productive and use CBT
It’s not a solution for me
You poor thing. You have gone through hell. My issue is not even worth complying about compare to your situation. I just hope you stay well and conquer your pain. God bless you!. Jim
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As recommended by 4 different my doctors I use micro dose THC infrequently during the days gaps and in the pm—almost so low that they are energizing rather than sedating—no high. It is helpful for pain—not for the insomnia
@indiana9 Hello , I’m very sorry to hear about your experience with allodynia. I was diagnosed with RSD or Reflex Sympathetic Disorder 24 years ago after a catastrophic accident. My ankle bone was broken and the Perineal nerve torn with loss of feeling down my lower leg from the knee to ankle . The next day my foot hit the wall as I was getting onto the toilet in a small space with walker and cast
The next day the symptoms of RDD or now called Chronic Regional Pain Syndrome type 2 ( nerve damage) . It was so severe that the pain of different types drove me to near suicidal. It was sheer chance that my Mom heard a lady on the radio talking about how touching a sheet in bed was like touching an iron causing extreme pain. Her foot would be cold as if frozen for an hr and a half then be blue as if no oxygen. After this the blood would start to move down and swell my leg and foot so badly I couldn’t wear any type of shoe or sandal because of severe reaction to touch . Then my leg would get red , so hot and burning. It felt like hot oils were being poured down my leg continuously. This is what I had . it is the sympathetic nerve system that goes out of wack . Like the thermometers in your house the sympathetic system is an automatic nerve system down to your spine that can be triggered by any accident or even a bruising of a limb can start the syndrome. Touching was so painful. I could not ride in a car because the bumps caused so much pain . Any type of touch would start it off
The water in the tub would be cool to touch on my good leg and feel like boiling water on the affected leg . Allodynia is abnormal sensitive to touch . I slept with my legs protected by a sheet holder from a health store that kept the sheeting from touching me . I couldn’t stand any touching as it felt 100 times the normal sensation
After years on narcotics, fentanyl, morphine, my pain specialist start my burning pain that goes down the leg the drug I use through years of trails i don’t know which drug worked in my Allodynia because I was on Venlafaxine for the burning pain, and the Allodynia was reduced over time by use of self desensitizing my leg . This is done over a long time. You can’t rush it . It’s Graduually caressing your skin with something extremely soft and only for a very short time. I had to research online clothes that were extremely soft and sweat resistant and airy . I couldn’t put a sock on for over a year . It’s a very slow recovery for me bu it is pretty much gone . The burning pain is always there but controlled with Suboxone. It’s the only drug that has helped all my symptoms of RSD
I was lucky but just don’t look ahead to where you want to be . You wake up and are a certain way with pain etc but do the exercises and desensitization a very little every day and then one day you will look at your leg and say omg it’s gone or tolerable
I tried everything in medicine. You need to take it one meds at a time for 6 weeks to see if helped If causing discomfort and bad effects then stop and try another or go to a different Pain Clinic These are the only ones to help A psychiatrist who is knowledgeable in drug treatment and effective on pain management. I never found the use of cognitive behaviour therapy to lessen the pain It does help to learn how to focus and block pain but you can’t be productive and use CBT
It’s not a solution for me
You poor thing. You have gone through hell. My issue is not even worth complying about compare to your situation. I just hope you stay well and conquer your pain. God bless you!. Jim