Fearing risks of Prolia

Posted by slr1 @slr1, Jan 6 8:55pm

I am going to my pcp tomorrow morning to discuss whether to start Prolia or Jubbonti after getting dexa scan results showing my osteoporosis has gotten worse. I took Ralaxifene for the last 2 years and it didn't help. I have researched these 2 drugs and have read a ton of bad side effects from patient reviews and I am really nervous to try! After taking Boniva just one time in the past, I felt like I was ran over by a truck for 3 days and I refused to ever take a biphosphate again. I am thinking about not starting a new drug and exercising more. Any input is much appreciated!

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susanjane77 | @susanjane77 | Jan 7 12:25pm

On my 4th shot of Prolia and no side effects at all

leslieb52 | @leslieb52 | Jan 7 12:56pm

In reply to @susanjane77 "On my 4th shot of Prolia and no side effects at all" + (show)

@susanjane77 thanks for sharing. I need to hear more about people with no reaction.
Can you share any questions I should ask before my appt tomorrow?

sup7401 | @sup7401 | Jan 7 12:59pm

In reply to @leslieb52 "@sup7401 what are you doing ro treat you OP?" + (show)

tried alendronate pill for a few years and that dud make an improvement in scan...went off it, ate really well for bone health, always, but scans were much worse after 2 years...the point of my comment was to say... I too was scared about side effects, but in the end yoy jyst have to make a decision...they ALL have side effects..I went with Prolia twice a year, injection...not one prob and good scans

susanjane77 | @susanjane77 | Jan 7 1:38pm

In reply to @leslieb52 "@susanjane77 thanks for sharing. I need to hear more about people with no reaction. Can you..." + (show)

@leslieb52 the only concern to have while on Prolia is not to have dental work right before or after your shot. My endocrinologist stated that I would be on it for the rest of my life I was on Reclast but my last DEXA scan showed that there was no improvement. She said that I should have no side effects. Blood work is taken before my shot to check my calcium scores . I was told too much calcium was not good so I don’t take calcium anymore I go to an infusion center for my shot and the nurses are great. They always ask if I have any concerns or questions . So, don’t hesitate to ask as many questions to get you comfortable Good luck!

leslieb52 | @leslieb52 | Jan 7 1:51pm

In reply to @sup7401 "tried alendronate pill for a few years and that dud make an improvement in scan...went off..." + (show)

@sup7401 thanks. I am scared of the side effects, but more scared of fractures, especially since i have to work on improving my balance.

leslieb52 | @leslieb52 | Jan 7 3:21pm

In reply to @susanjane77 "@leslieb52 the only concern to have while on Prolia is not to have dental work right..." + (show)

@susanjane77 thanks. I will see if I can get in to see my dentist before I begin shots.
I heard the “the rest of my life” too.
I heard that Prolia is recommended for 10 years.
Given that I am 73; that will take me to 83, then am I on reclast for the rest of my life?
Can I ever get off this medication?

leslieb52 | @leslieb52 | Jan 7 3:24pm

In reply to @susanjane77 "@leslieb52 the only concern to have while on Prolia is not to have dental work right..." + (show)

@susanjane77 do you have any suggestions about questions I could ask? My head is swimming.
Did you end up doing Prolia?
I am responding to so many women, I can’t keep things straight.

susanjane77 | @susanjane77 | Jan 7 4:47pm

In reply to @leslieb52 "@susanjane77 thanks. I will see if I can get in to see my dentist before I..." + (show)

Hi,

Once you start Prolia, you will always be on it (unless for some reason
that it is not helping you) but you will not know till 2-3 DEXA scans.

I think you misunderstood, I was on Reclast before taking Prolia. I was
taken off Reclast because my DEXA scores did not improve.

Hope this helps!

slr1 | @slr1 | Jan 7 5:21pm

In reply to @leslieb52 "@susanjane77 do you have any suggestions about questions I could ask? My head is swimming. Did..." + (show)

@leslieb52
@beanieone reacted with "hug" to your comment on Wed, Jan 7.

At today's pcp appt, I learned she misread the dexa scan report and my lumbar T score was not significantly worse than scan 2 years ago, but a slightly better number. My hip and femoral score was slightly worse. We made a plan. For now I am staying on Ralaxifene, scheduling a consult with an endocronologist as recommended, self-paying for a dexa scan at the end of the year, then will decide whether to do the Prolia route. I do not want any fracture of anything!!!
I thank each one of you gals for your input and advice! I will continue with this group! So glad I found you all!!!