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Does anyone suffer from CIRS (Chronic Inflammatory Response Syndrome)?

Posted by sunnyred2247 @sunnyred2247, Oct 26, 2022

I have CIRS, and looking for others who r, as well. So few Drs who even know what it is!!

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swalex | @swalex | Jan 4 10:43pm
In reply to @karyan8 "I was diagnosed with CIRS in 2017. I worked with a functional medicine doctor for treatment..." + (show)
Profile picture for karyan8 @karyan8

I was diagnosed with CIRS in 2017. I worked with a functional medicine doctor for treatment and had great success but still have flare ups. My Mayo docs had no idea and only prescribed bandaids for my issues such as a steroid cream for terrible itchy rash.

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@karyan8
What is it?
ME/CFS or CIRS?
Chronic inflammatory response syndrome: a review of the evidence of clinical efficacy of treatment.
https://pmc.ncbi.nlm.nih.gov/articles/PMC11623837/.
and
GWCIM is affiliated with Dr. Jonah Yakel and his “The CIRS Brain Solution” medical coaching program https://gwcim.com/services/shoemaker-protocol-cirs-mold-toxicity/

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fizzgig | @fizzgig | Sep 16 2:43am

I've been trying to heal for over 10 years now. I wish I could find any regimen that actually works for long enough to help me have any type of relief.

I basically live in a bubble. I'm so immunocompromised I believe I'm even allergic to myself. I'm always weak .

Moved to be closer to hopefully have Mayo clinic help me and I became so much worse, where I moved could not be worse.

Before all of us has happened I used to bicycle 18 miles a day I was the picture of perfect health never got sick I had migraines but we all have little almonds but it never stopped me until this happened and it just literally took my life away from me and I've been fighting to keep it since then...

My Drs actually refer to me as an enigma. 😐🫤

Any suggestions?

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loyd1957 | @loyd1957 | 6 days ago
In reply to @pacer3702 "Many of the Covid vaccine-injured patients have POTS. Long Covid and vaccine Long-Haulers share similar pathology..." + (show)
Profile picture for pacer3702 @pacer3702

Many of the Covid vaccine-injured patients have POTS. Long Covid and vaccine Long-Haulers share similar pathology (toxic response to the spike protein). Education and support regarding neurological vaccine injuries is available by joining the Neuro V Long-Haulers Facebook group. Most physicians are in denial or have not been educated about Covid vaccine injuries.

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@pacer3702 Most of my symptoms came after COVID before vaccine. I suppose everything can affect different physiologies and co-morbidities people have. No person is exactly the same with what is going on inside their bodies. Illness is more of a crapshoot for me than vaccines, but everyone should have a choice.

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